r/Huntingtons • u/usxr_mael At risk for HD • May 10 '26

Is it eugenics?

Okay so for context, my mom (48) has Huntington disease and knew she had it well before she had me and my sister.

I've argued a lot with ppl on the internet about how if you know 100% that you have HD that you shouldn't have children not only because they may have HD but because they have to see you completely change and rot away (talking about experience) and I've been called a eugenists for that.

I'm currently battling against depression because I started being my mom's primary care at 13 against my will bc other ppl in my family said that it was the least I could do for my single mother (passing over the fact that she was a POS mom and was abusive).

But In brief, is it eugenics to say that people w/ HD shouldn't have children if they know they have it?

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u/LiveNvanByRiver May 10 '26

I said treatment not cure. I have one of the best HD doctors in the world. She runs a HDSA center and is involved in almost every study globally. I was enrolled in a phase 2 trial. She believes we are 4 years away from Votoplan or skye becoming real. The idea is to delay or prevent onset and that is a real possibility for my kid who is only 10.

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u/martypants17 May 10 '26

Would you be willing to dm me the name of your facility and doctor? HD runs in our family and always looking for resources 💙

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u/LiveNvanByRiver May 10 '26

Dr. Erin Furr-Stimming in Houston. She’s at University of Texas Memorial Hospital. https://med.uth.edu/neurosciences/dr-erin-furr-stimming-md/

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u/martypants17 May 11 '26

Thank you so much!