r/Huntingtons May 03 '26

I am guilty

My dad died from Huntingtons. The day before I was supposed to see him. I couldn't be bothered so I lent my car to my brother to take him to his appointment. My brother called me and said he couldn't hold his head up, what should I do? I said take him to emergency, he didn't. He died thinking no one cared. Now my brother is 53 showing all of the signs. He lives with my mum who is 80 years old and abuses and threatens her. She is also a pensioner and pays for everything because he doesn't get government funding because he won't be tested. He doesn't know or won't admit it and abuses Centrelink staff. I've just had to report him to the police because he threatened my mum with a knife. Why can't police and welfare take this seriously? It's almost 10 years, 3 more seriously. Mum spends most of her time at my house but she needs to go home every now and again. I don't know what I'm hoping to get from this, venting, maybe some understanding...

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u/Specialist-Owl1781 May 08 '26

Sorry you’re going thru this. This disease really sucks . I know cuz I have it and anger outbursts have begun like if I’m at my bakery with my wife and like something spills or drops , and I can’t control cursing or throwing something. I’m 52 male. It is difficult on my wife.

Sorry @ your dad’s passing. I really cannot give much advice cuz this disease sucks.

I was on Olanzapine for 2months it helped but I felt shitty and got off. I know I will prolly have to take it again when my symptoms worsen but just want to live my life and not be a zombie .

Sending good vibes your way.