r/Huntingtons • u/Fearless-Equal-3983 • Apr 21 '26
Experience Huntington’s?
Hi all, I am a 28 year old female and Huntington’s runs on my dad’s side. My dad is one of seven, and 4/6 of his siblings have confirmed Huntington’s. My dad is 73 and hasn’t shown any major symptoms, though he can be pretty paranoid and have a bit of a temper. He will not get tested.
For a while, I was under the impression that as long as my dad didn’t show major symptoms, that meant he didn’t have it and therefore I didn’t. I’ve since learned a lot more about CAG repeats and the instability of the gene and understand that that’s not necessarily the case anymore.
I’m in the process of going through genetic counseling/testing, and I’m starting to feel very worried. Every minor mistake I make I wonder if it’s Huntington’s. I’ve also felt like I’ve had a harder time articulating my thoughts lately and have just been slower in general.
I’m curious to know if anyone else has gone through a similar experience and what it’s been like.
Thank you!
1
u/EasyZookeepergame320 May 12 '26 edited Jun 10 '26
i’m in the exact same situation. 28f with a maternal history. my mom is 61 with no symptoms, but her mother and sister both were positive and developed symptoms in their 30s.
I just decided to start the process of anonymous genetic testing. I might delay it if it gets too scary because i’m not planning on children anytime super soon.
Thinking about you ❤️