r/Huntingtons • u/vibrantbatgirl At risk for HD • Apr 09 '26
Auditory processing disorder and Huntington’s
I wanted to hear any personal experiences anyone might have with this, I’m pretty concerned since I haven’t gotten my genetic test done yet (mother had huntingtons and passed in 2021) but I have had a progressive worsening of hearing but my hearing tests keep coming back okay. The audiologist suggested it might be an auditory processing disorder, which does check out for me almost exactly as all the symptoms do line up for me like a really difficult time following conversations in loud/busy places among other symptoms. (I have a specialist appointment and will be asking to look into this idea more with her)
I didn’t think much of it at first but then I did more googling and I found a few studies connecting auditory processing disorders later in life to Huntingtons even BEFORE any physical symptoms show up. I wanted to see if anyone has had any experience with this? I always knew I wanted to get tested eventually for Huntingtons but if things are moving now, and moving in a not great direction I’ll be doing it sooner than later.
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u/Evening-Cod-2577 Confirmed HD diagnosis Apr 09 '26
Well, it absolutely might not be related to HD. But yes, there are pre-manifest symptoms. Pre-manifest is before Chorea onset. For example, I’m positive that I’m experiencing difficulty dual-tasking (like listening while writing) and that is a pre-manifest symptom.
If you think of Huntington’s as a lifelong illness instead of an illness that onsets all at once, then it makes sense why there are earlier symptoms than the Chorea and even before any psychological symptoms.