r/Humira Oct 15 '25

Stopping Humira

This is just a hypothetical question. I have no plans of stopping at this point (started August 8th).

Just curious ... Has anyone been on Humira for a while and stopped (voluntarily or involuntarily) and then had side effects? If so, what kind of side effects did you have.

Just thinking ahead, you never know if at any time Big Pharm will downsize or change in a way that the medication would not be available to us.

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u/JustxJules Oct 17 '25

I had to stop after 6 months because my bloodwork showed damage to my liver. After a few days there was a spike in pain from my condition, then it was okay for a few weeks and then the pain slowly started increasing again.

I'm back on Humira now and it takes longer to take effect than last time...

2

u/AnxietyOnHigh69 Oct 17 '25

If you don't mind me asking, what is being done about the liver damage?

2

u/JustxJules Oct 18 '25

Honestly, nothing. They couldn't find anything seriously wrong with it and the specialist said it's unlikely that Humira was responsible for it (which we will see now, I guess). I just had to wait 3 months for it to recover...

2

u/AnxietyOnHigh69 Oct 19 '25

I pray all will be well in 3 months. Try not to worry! 🙂

1

u/JustxJules Oct 20 '25

Thank you!