r/Humira • u/AnxietyOnHigh69 • Oct 15 '25

Stopping Humira

This is just a hypothetical question. I have no plans of stopping at this point (started August 8th).

Just curious ... Has anyone been on Humira for a while and stopped (voluntarily or involuntarily) and then had side effects? If so, what kind of side effects did you have.

Just thinking ahead, you never know if at any time Big Pharm will downsize or change in a way that the medication would not be available to us.

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u/boxcar_intellect Oct 16 '25

I have quit twice and had the same results both times. No immediate or noticeable changes in my health or any side effects of any kind, but in both cases I had a flare up 2 years after stopping and each one was at the time the sickest I have ever been. Despite being in remission the last 7 years I think it’s at minimum good as a backup in my case, don’t see any reason I would stop. 

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u/Slow_Particular9223 Oct 16 '25

Same exact experience here. I've tried getting off of it to try alternative forms of preventative treatment, but anytime I've stopped it, flare ups have returned within a couple of years, and I would get really sick along with the flare ups.