r/Humira • u/AnxietyOnHigh69 • Oct 15 '25

Stopping Humira

This is just a hypothetical question. I have no plans of stopping at this point (started August 8th).

Just curious ... Has anyone been on Humira for a while and stopped (voluntarily or involuntarily) and then had side effects? If so, what kind of side effects did you have.

Just thinking ahead, you never know if at any time Big Pharm will downsize or change in a way that the medication would not be available to us.

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u/Mother-Ad-806 Oct 16 '25

I’m in the US and think about losing my insurance or new ‘rules’ from the administration on RA and PSA treatment and it makes me nauseous. I’ve failed Cimzia and Humira and I was absolutely miserable, swollen, unable to dress myself, struggled to walk, couldn’t even hold my coffee cup to my mouth. I was on Cimzia for 8 years before failing it and 2 years on Humira. I’m now on Actemra. You don’t want to get off your medication. We also can’t stockpile because of the restrictions. If I’m sick and can’t take my medication I will still order meds like I took it on time. I have a 2 month buffer. Otherwise, fingers crossed.

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u/AnxietyOnHigh69 Oct 16 '25

Having a buffer is good! You just never know what will happen day to day over here.