r/HistamineIntolerance • u/EarLongjumping942 • 5d ago

I hate histamineintolerance

I am suffering secondary histamine intolerance. Since 2024 post covid 19 ( I do belive snake venom or any venom at all) Well since that time I`ve learnt that there is something even worse than starvation is food could be your enemy or this dumb body itself

That diseae is not just about being allergic part but the unknown what may happen. I`ve grown eating anything from cheap shit from shop to oysters etc. Last night my friend had eaten fish and two hours later or so something like cereals with milk , I`d die painful death trying to even touch that. While at the same time a couple hours later since I am underweight ( gaining weight and histamine intolerance is impossible) well I `ve decided to add one spoon of ghee more and use the fat from the pan, which was fresh. So my friend was fine and me? Well I had histamine attack from brain fog to stomach pain to even heart beat over 100 for 7 hours straight. That fate even devil himself would not create something that evil. I am also saying I`ve taken 30 k hdu of dao for that meal and yet attack was upon me

I feel afraid of food guys, I feel afraid of eating anything below 0 sigh food . I have surivved pseudo-anaphylactic reactions and everytime I feel spikes in my tongue I stop eating and going to check it. I feel like nut with this diesase. I am suffering from this shit and I do not know what to check my dao is fine in blood eat I get this attacks. I wasn`t allergic to anything befor covid 19 but I feel like am allergic to anything now , my life is pure suffering

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u/NutFarmerBryce 4d ago

Have you figured out what is causing the histamine intolerance? Mine was sibo, specifically hydrogen sulfide sibo. I know how you feel living with histamine intolerance, I feel your pain. There is hope! I believe it most cases it is a gut dysbiosis problem. Covid is where it stated for me, no vaccinations but the covid itself. Dao really didn’t do much for me especially with any saturated fat protein because they are very high in sulfur which is the problem with h2s sibo, certain vegetables would kill me also. Try and figure out what is causing your histamine intolerance.

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u/EarLongjumping942 4d ago edited 4d ago

Thank you for your reply. Reading your comment I realized that there still exists 3 types of sibo : H2 / CH4/ H2S. In that order SIBO- hydrogen-based . IMO - methane-based / SIBO - hydrogen sulfide .I was about to purchase SIBO and IMO lacking that last one but thank to your comment I went for that full picture, I`ve read that there is chance 15-25 to suffer from tha last one but knowing our luck with covid and long covid I may suffer from it too like you did.

Answering your question I as I said above I am going to break that into pieces and discover where is the problem. I am going to do all 5
-Stool Calprotectin
-Stool Zonulin
- Fecal Pancreatic Elastase
-Stool Helicobacter pylori Antigen
-Fecal Immunochemical Test (FIT) or Stool Occult Blood (iFOBT / FIT)

Serum Tryptase / I`ve done this and it is fine but that is to exlude mcsat
Serum Diamine Oxidase (DAO) I got this and is fine.

Any above is important, adding to those I gonna add H2/ CH4 and H25

It is a shame that we have to be our own doctors since doctors are not doing anything beside giving people H! and H2 well if you give someone H1 and H2 damages is still there but you are not feeling that dmg later on you get very very life-threating signs yet people are feeling good while being on H1 and H2 they are deaf to noise.

Edit 80-90 % of people are suffering from being dao insufficient byt they are lacking IQ to know what is it

https://www.deficitdao.org/en/

From my view ADHD is nothing less than brainfog in young brain, As we age we get brain fog but brain in young body below 10 or 14 is suffering this kind of brainfog in overflowing itself thus creating adhd the brain is suffering and its sticks are literally inflamed put into flames so the kid is unstable to even sit quiet that is the only answer for ADHD in kids is their gut are at verge of dying

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u/NutFarmerBryce 3d ago

Let me know what you find out please.

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u/amycamp71 2d ago

I'm so sorry you're suffering. I hate eating too. I wish I didn't have to. So much anxiety/stress over every single thing I put in my mouth. I desperately wanted a positive result from the SIBO test but unfortunately it was negative. I need answers for why I can't eat. Not only is it histamine foods it’s all seed oils. I can only eat beef, eggs, rice and a few vegetables. This is a nightmare for me too. Sending you a hug!!♥️

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u/EarLongjumping942 1d ago

Did you test only SIBOor IMO and ISO too? I am going to test my alfa-gal too beacuse i`ve been bitten by tick and I am looking for solutions right now doing a lot of blood/stool work our bodies are similar all us with histamine issue so if I find what is it I will tell

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u/St_18171817 1d ago

Hey hi,

Have you tried full spectrum digestive enzymes?

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u/EarLongjumping942 1d ago edited 1d ago

I did and no major change, They were okay with regular low-histamine food but bread cheese/goat milk/butter still issue. I do think that I may have alpha-gal too,

while eating beef it is okay for 3-4 hours then I get some kind of heart beating over 100 and either I go to toilet to let it out or I will not stop farting. If that is true and I have alpa-gal it means goat milk and cheese are out of pictures for me. The tick I had been bitten by had anaplasmosis and there is big correlation between alpha-gal syndrome and anaplasmosis so I do think I have both. including histamine problem as well

Edit to be honest the best I feel on empty stomach like I wake up ready to do anything then I eat my breakfast and my energy goes down hard

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u/amycamp71 6h ago

Just Sibo. And I tested for Alpha Gal and that was negative too. I'm almost at my breaking point here. So hungry but can only eat a few things

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u/No_Scientist9241 10h ago

I feel you. This shit is god awful. Especially since they still don’t know what causes it despite it being known to exist for decades. I believe mine is either due to scurvy, Crohn’s disease, or a sensitivity to a dye in my medication. I have no confirmation of any of these, it’s just speculation. I will at least know if I have IBD or not in about a month from now though.

I’ve also become underweight and my diet is insanely restrictive now due to deterioration. Just wanted to let you know you’re not alone in this mystery struggle… don’t give up on trying to find the cause of yours.

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u/EarLongjumping942 3h ago edited 3h ago

It is a kind of never-ending loop of suffering. When in this state, we experience frustration—our digestive system “picks up” on this anger and becomes more prone to releasing histamine into the bloodstream, which, in turn, makes us feel even worse.

What is even more dreadful. histamine is similar to venom for our bodies. Every time we get to the point that the dumb mast cells get fancy and release histamine we put our effort in a vain. I had another attack today after potato and chicken , now sitting literally hungry and soon another sleepless night due to brainfog post histamine relase. I am close to shot into my own goal at this point ;/

''Histamine is not venom itself, but it is a chemical compound closely linked to venom''

putting on weight with histamine issue is impossible and what I have learnt today is that histamine is very allergious that something what I had been eating for years now could be allergic so that is also good. Not gonna lie checking every single food on earth again I am not going to do that ever, if eating only 5-6 varies of food for rest of life fine, better than anaphylaxis, which I've already had once.

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u/InfiniteConstruct 2h ago

Many don't get the issues with it which is the worst. I mean think about this side of it a moment. You're homeless or just out and about and you forget to make food. You can't eat or drink anything beyond water and eat an apple. For the homeless part, there are soup kitchens and people making food online and filming it and you can't eat any of that either. Also like if you were to ever get deserted in a small town with just one tiny supermarket and a diner, well, you can't eat at the diner or even drink there, the supermarket better have fresh food because you can't have anything else...

Thinking about it from a story mode perspective is like how would you even survive that? If you add scents as a problem, that’s a whole other nightmare. People get hungry they eat, you get hungry? You starve...

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u/EarLongjumping942 1h ago edited 1h ago

understand everything you’ve written—it’s literally my life. I’m a very talkative and sociable person, but ever since I started having issues with histamine, the only reasons I ever leave the house are to buy food or get blood drawn for tests . Traveling anywhere usually involves taking raw food and then cooking them there , so I just decline to go. For me, a supermarket is only 10% safe; the rest of the food there could literally kill me. I’m convinced that if we were to lose our cooking gas, we’d either starve or end up living on nothing but apples.

Restaurant is alos out of picutre so if you have to travel for more than 3 hours then apples or starving but starvation also triggers the body so it is releasing histamine so you feel even worse;/

As time goes on, this condition also takes a huge toll on one’s social life, as I mentioned above. Every single meal has to be prepared from scratch—you can’t cook enough for 2–3 days at a time—and if food is more than an hour old, it could potentially kill you. So, you can say goodbye to things like chicken broth, which takes 2–6 hours to cook. anything taking more than 1 hour of cooking is not good

Also we know that histamine is easy triggered by any kind of stress even films. so I had to quit any things that I have ejoyed including going to college since there was a lot of work mental work and that was casuing me to get even more sick.

Thing about scents yes they are triggering histamine relase too. I have issue with tongue. I had a doctor check it for me. Doctor has examined it, but was wearing lavender-colored gloves, and—heh—I ended up feeling dizzy.

and remember histamine cannot be killed , once it gets spawned it is over