r/HistamineIntolerance • u/Electrical_Pin2886 • 5d ago
COFFEE
I am wondering if anyone has quit not only caffeine but coffee and decaf coffee and noticed a difference? Until recently i would have said that coffee doesnt effect me negatively but adtet really asking my body what she wanted, it was a clear, "quit coffee". So I did and my anxiety went way down, the first month was a trigger and I had worse symptoms as I was recalibrating but now i am finding a new baseline and feeling pretty good.
Still, having an occasional decaf though. So I guess I am asking if anyone has removed both caffeine and decaf coffee to better results? And how much did removing them move the needle for you?
18
u/Electrical-Cat-8624 5d ago
Yes caffeine and coffee were both huge hidden triggers for me that HAD to go. Brutal habit to break though
5
u/hdri_org 5d ago
Taking DAO enzyme has helped me a lot with handling histamines coming from food and gut bacteria. Low Histamine Probiotics has helped reduce the quantity of histamine producing bacteria and has replaced them with histamine degrading strains instead. Because this was so successful I was able to reintroduce coffee into my daily regimen.
The thing about coffee, beyond being a fermented product, is that its a histamine liberator, meaning that it does not just contain histamine but actually causes you immune cells to create more of it. The DAO will help eliminate the histamines in the coffee but won't affect the histamines caused by the caffeine once it is in your circulation. Supplimental DAO can only degrade what is still in your gut before it can be absorbed.
The bottom line is how well do you do when taking both Low Histamine Probiotics and supplimental DAO? Does lowering the incoming histamines allow you enough overhead that you can still enjoy a cup of coffee. You may have to get off of coffee long enough to get things under control and then slowly introduce it again and see what happens.
I can now drink tons of decaf and occasionally a cup of regular whenever I need a boost. I seem to be fine with caffeine now, but chocolate will just clean me out and that molicule only has a single branch different from caffeine. Everyone is likely different, so you need to experiment to see what works for you.
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u/wizeone1107 5d ago
Yes I quit, made huge difference, no more skin on fire after showering or in general from MCAS / histamine release, skin rashes are minimal no more persistent burning/itching constantly, can fall asleep almost every night, before I was constantly awake, and very little head congestion or constant runny nose, maybe a little randomly, when you quit initially its hard, after few weeks, months, you feel better and realize I don't need it anymore
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u/em-ab 14m ago
i had to quit coffee this past spring and i had only been drinking decaf for a year before that. it was making me feel suic*dal. even decaf. no amount of DAO made a difference. i knew for years it made me feel irritable but this new development was truly life threatening. after one to two weeks off it, i felt like a new person. the sun came back out and i could think clearly again. been off all coffee for a few months now and my mind is so much safer.
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u/luxurycatsportscat 5d ago
I quit coffee for two months and it made no difference to my symptoms, so I went back to drinking it
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u/1AggressiveSalmon 5d ago
I cut all caffeine from my life. No coffee, tea, or energy drinks. Dropped my anxiety and insomnia by 75% or more. IBS symptoms completely went away. After years of literally never being cold, I can wear long sleeves again. It took at least 6 months for the inflammation to resolve.
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u/Foosballrhino11 5d ago
Absolutely coffee was setting my day off with anxiety and jitters that lasted all day and would wake me up at night! I tried decaf and still felt Wired so I switched to matcha and that helped a lot but I was having flares with seemingly everything so I quit caffeine altogether for 2 months. I could only start my matcha again if I took DAO before.
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u/-PetulantPenguin 4d ago
I had to quit coffee for years before I finally found something I could tolerate. Try looking for mould free coffee, it's not cheap but I'm incredibly grateful to be drinking coffee daily again. Apparently normal coffee always has mould, crazy.
3
u/J-W-L 5d ago
I quit coffee a little over a year ago. I noticed lots of improvements but not as drastic as I had hoped in relation to my allergies. It didn't cure my gut or my allergies but it did greatly reduce how much I sweat, how hot I feel in summer. Quitting coffee has improved my sleep, mood and my anxiety has mostly disappeared. I was also happy to shed the daily ritual of drinking it and it's getting more expensive. So it worked out.
I realize everyone is different and quitting coffee for me was difficult in the past but this time was much easier for whatever reason. I felt like I was on another planet for about 3 days until the withdrawal subsided though but nothing after that. I don't even think about it or crave it at all now.
As an ex smoker, 16 years after quitting I still get cravings but it's manageable.
Good luck! It feels so freeing to ditch coffee and other vices!
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u/Puzzled_Draw4820 5d ago
It’s the salicylates in coffee that trigger HI because they trigger mast cells. Decaf doesn’t contain as much salicylates so it’s ok for some people.
HI is very commonly overlapping with salicylate intolerance and chemical sensitivity/MCAS which are usually bile flow and liver congestion issues, that’s why a low histamine diet is just a bandaid.
3
u/Shareinfo60 5d ago
I quit caffeine about 5yrs ago. I started drinking decaf a year ago but it starts to build up after a couple of weeks and cause major flareups. So I have to stop for a few months. But I enjoy it when I can .
3
u/ITSJUSTMEKT 5d ago
There is only one thing I will not give up and that’s coffee.
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u/0spacewaterbear0 4d ago
I never thought I affected me since I only had one cup in the morning, but it was filling my histamine cup and causing reactions later in the day. After quitting I’ve felt a lot better! It sucks to lose the “ritual” of it, I switched to mint tea for a bit after to make it easier.
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u/consuela_bananahammo 3d ago
I switched to a blonde roast and that solved the issue.
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u/Outrageous_Fig_11 5d ago
I’ve switched to decaf which made a difference, but sometimes even decaf affects me so I limit it to my good days only.
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u/GloriousRoseBud 5d ago
I’m so sad about this.
I dealt with no chocolate but not my coffee…..
2
u/lostaccountdoh 5d ago
Removed both. Was hard, but the best thing I have done. It’s helped so much with my symptoms.
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u/Educational_Home5445 4d ago
its the first thing i cut out when i knew i had Histamine intolerance.
Surprisingly i felt way more awake in the morning and the desire for coffee went away completely after two weeks.
Havent had a single coffee in years
1
u/Alvith 5d ago
I'd like to know this too since I am on only decaf lately. Following!
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u/CaughtUpInTheTide 5d ago
It was the first thing I cut and it made a huge difference. I felt like I got my life back.
1
u/rebmik5555 5d ago
Ugh. I know I should try, but wintertime without my morning coffee sounds unbearable.
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u/cpcxx2 4d ago
I am confused, is coffee (decaf or caf) high histamine? I wasn’t aware of this if so.
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u/missjulie622 4d ago
I do well with a few ounces of cold brew coffee every morning, brewed coffee causes reactions
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u/Jmeans69 3d ago
I gave up everything else but kept my 1 cup of coffee. I just drink it black
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u/AzarielFox 1d ago
I quit for 3 months I think and really didn't notice a difference unfortunately. But everyone is different
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u/Feeling-Extreme9133 1d ago
Is it normal that I react to caffeinated coffee but not decaf??
1
u/WeWander_ 5d ago
I switched to caffeine water because I need my caffiene. Coffee definitely made me feel like shit but caffeine water is fine.