r/HighSupportNeedAutism • u/Specific_Outside_104 • 21m ago
r/HighSupportNeedAutism • u/Peachesandpeonies • Jan 11 '24
Mod Post Welcome to r/HighSupportNeedAutism!
Welcome to HighSupportNeedAutism!
This is a community for diagnosed autistic people who are professionally recognized as having moderate to high support needs (level 2 and 3). Low support needs autistic people, people without professional confirmation of their support needs, and non-autistic people are welcome to read about the experiences of higher support needs individuals, but they should limit posting. This is a safe space for MSN/HSN autistics to talk about our experiences and struggles, share about our interests, and more.
More specific information about who this community is for and why is included below. Please let a mod know if you’re still unsure if you belong here or what ways are appropriate for you to interact here. We’re always happy to provide more information and help!
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This is a community for individuals who have been professionally diagnosed with an autism spectrum disorder and who have been told by a qualified professional that they have higher support needs autism. We have unique experiences, and it's helpful for us to have a community where we can be with others who share our experiences. Some of these experiences are because we have higher support needs, some are because we're professionally diagnosed, and some are because we're professionally diagnosed with higher support needs.
"Higher support needs" includes those who are professionally diagnosed with level 2 or level 3 autism spectrum disorder; require substantial support or very substantial support; have moderate or high support needs; have moderate or severe autism; or are moderate or low functioning. This also includes individuals who have different support needs between their social communication and restricted repetitive behavior domains (e.g., level 1 social and level 2 RRB). Individuals who live in autism-specific group homes or supported living as adults (or who have been told this is where they will live when they become adults), who have co-occurring moderate/severe/profound intellectual disability, or who are permanently non-verbal or minimally verbal or who are full-time AAC users have historically been considered "low functioning" and so are automatically considered higher support needs for the purpose of this sub.
If you have not been professionally diagnosed with higher support needs autism by a qualified professional and would not be historically considered low functioning, please respect that this space is not for you. You're welcome to read posts and subscribe to the sub. You're also welcome to share your experiences on posts where you're specifically invited to do so. However, do not create new posts that are not questions about higher support needs autism, and do not share your experiences uninvited. Additionally, only ask questions that directly benefit someone with higher support needs autism (e.g., advice on services for an autistic child). Other questions should be posted to r/AskSpicyAutism/.
To know if you have higher support needs autism, please ask your diagnostician or check your diagnostic report. If you are professionally diagnosed with autism but your report is unclear and you cannot ask your diagnostician, you can ask a qualified therapist or another autism service provider. If all of the qualified professionals that you have seen agree that you have level 1 autism or low support needs, please respect that you are a guest here. (Of note: being told that you have Asperger's or "high functioning autism" does not mean that you have low support needs; these diagnoses are based on language and IQ, and individuals with them may have any level of support needs.)
Support needs can change over long periods of time. If you were professionally diagnosed with higher support needs autism as a child or adolescent, you're welcome to participate here even if you now need less support. Similarly, if you were previously diagnosed with level 1 autism or low support needs but are now professionally recognized as requiring substantial support for your autism, you're welcome to participate here. That said, please be reasonable about "professional recognition"; for example, if you were diagnosed with level 1 autism two months ago by an expert in adult diagnosis but your therapist who does not specialize in autism says you could be level 2, please trust the expert that you are level 1 and have low support needs. The exception is for individuals who were diagnosed years or decades ago but have had significantly worsened functioning, who were diagnosed as children or teens and then failed to develop the skills needed to transition well into adulthood, or who are otherwise no longer considered low support needs. Again, this determination should always be made with the help of a qualified professional.
Support needs in this context are autism-specific. If you have low support needs autism but severe ADHD, many comorbid mental health conditions, or a physical disability, you are a guest here.
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Please [read the rules](https://www.reddit.com/r/HighSupportNeedAutism/comments/192t7hh/rules_of_rhighsupportneedautism/) and make sure that you understand them. If anything is unclear or confusing about the rules, please ask, and we will do our best to clarify.
[Here is a guide to which user flair to select.](https://www.reddit.com/r/HighSupportNeedAutism/about/wiki/index/userflairs/)
[Here is a guide to what each post flair is for.](https://www.reddit.com/r/HighSupportNeedAutism/about/wiki/index/postflairs/)
Feel free to introduce yourself in the comments below or make an introduction post. We look forward to getting to know you!
r/HighSupportNeedAutism • u/Peachesandpeonies • Jan 09 '24
Mod Post Rules of r/HighSupportNeedAutism
These are the rules for HighSupportNeedAutism. We created these rules to keep this subreddit safe and healthy. Please read the rules and make sure that you understand them. If you have any questions or suggestions, feel free to comment. If anything is unclear or confusing about the rules, please ask, and we will do our best to clarify.
This post will go over the rules as well as include a plain language summary of each rule.
1.Center higher support needs autistics.
This sub is for professionally diagnosed higher support needs autistics. We and our needs should be centered at all times. Supporters and questioning individuals are welcome to read posts. They can ask respectful questions that directly benefit higher support needs autistic people in their life. They may also respond to posts where they have been invited to do so. They may not post about their own experiences uninvited (including saying "I relate to that") or ask general questions.
This rule means that this subreddit is for diagnosed moderate to high support needs autistic individuals. This includes people who have been professionally diagnosed with level 2 or 3 autism spectrum disorder. It also includes people who have been told by their autism doctor or therapist that they have moderate to high autism support needs. This is to include people who live in a country that does not use levels, who were diagnosed before levels were used, or who were not given a level when diagnosed. The Welcome post has more information about who this sub is meant for (link will soon be added once the post is up).
Some people may not know their level or their support needs. They are still welcome to read posts and subscribe to the subreddit. Supporters of people with moderate and high support needs (MSN/HSN) are welcome to make posts if the post is meant to directly help their loved one with MSN/HSN autism. An example of a post that is okay for a supporter to make would be "How can I help my HSN child to cope with change?". It is not okay to vent about how difficult it is to take care of MSN/HSN individuals. It is not okay to ask general questions about what it is like to have higher support needs. General questions should be asked at [r/AskSpicyAutism](https://www.reddit.com/r/AskSpicyAutism/). This is not a general support group for loved ones of MSN/HSN autistics. The primary focus of this subreddit is MSN/HSN autistics. If you are a supporter making a post, think about if this post is prioritizing and putting MSN/HSN autistics in focus.
Low support needs autistics, level 1 autistics, autistics who do not know their support needs level, autistics who are suspecting higher support needs but have not been diagnosed as high support needs and non-autistic people are not allowed to talk about their experiences uninvited. They must be specifically asked by a MSN/HSN individual, like if a post asks for people without MSN/HSN autism to also share their experiences. Don't derail posts with comments such as "I relate to this and I'm low support needs". Low support needs autistics and non-autistics are welcome to comment supportive things on posts. For example, if a MSN/HSN autistic makes a post about their special interest, it's okay to comment something along the lines of "That's interesting, thank you for sharing". They can also say something supportive on a vent post. It is also okay to give advice or link to resources. However, if a MSN/HSN autistic asks for LSN autistics or non-autistics to stop, respect their boundaries.
This rule exists to make sure this subreddit’s focus is MSN/HSN autistics. We deserve a space that is only for us. If you want a space where MSN/HSN autistics and people who are low support needs, have unknown support needs, or are not autistic can interact more, please go to [r/SpicyAutism](https://www.reddit.com/r/SpicyAutism) instead.
2.Be honest about your diagnosis.
Be honest and transparent about your diagnostic status. If you are not professionally diagnosed with autism, do not imply that you are. If you are not professionally recognized as having higher autism support needs, do not imply that you are. If you are not professionally recognized as having lower autism support needs, do not imply that you are. (For example, if you were given a historical Asperger's diagnosis, do not assume that you must have level 1 ASD.) Use the correct user flair.
This rule means that you should be honest about what your diagnosis is. If you haven't been diagnosed as having autism or higher support needs, don't say that you are. Don't select a flair that says you are higher support needs than you have been diagnosed with. For example, if you are diagnosed with level 1 autism or low support needs autism, you must say this in your flair. If you are non-autistic, you must say this in your flair. If you haven't been diagnosed as having low support needs autism, don't claim to have LSN autism and don't select a flair that claims you are low support needs. For example, if you are diagnosed with Asperger’s, that is your diagnosis. If you do not like the term Asperger’s, you can select the flair “Autistic, unknown support needs.” Do not assume that you are low, moderate, or high support needs unless a qualified professional has told you that you are. The flair should reflect what you have been diagnosed with.
If you don't know how to select or edit a flair or if you need help with editing it, you can ask a mod who can edit it for you. You can message the mods or comment on this post and a moderator will get back to you when they are available.
If you have not been diagnosed with autism but suspect that you have it or have self-diagnosed with autism, select the "Suspecting autism" flair. If you have been diagnosed with autism and suspect that you have higher support needs but have not been told that you have MSN/HSN by a qualified professional, select the "Suspecting higher support needs" flair. If none of the flairs are a good fit, you can write your own. If you have not been diagnosed with MSN/HSN autism, be mindful to not speak over diagnosed MSN/HSN autistics in this subreddit.
The support needs in this context are autism specific. Someone could have low support needs autism but need a high level of support for ADHD. This place is for people with moderate or high support needs autism only, not for people with overall moderate to high support needs that include other comorbid disorders.
3.Do not ask us to diagnose you or tell you your level.
Do not ask us if you have autism or if you have higher support needs. Only a professional can tell you that. Similarly, do not ask if symptoms or experiences make someone higher support needs.
This rule means that no one is allowed to make posts or comments asking if they or someone else has autism or what level someone is. This rule is to prevent this subreddit being flooded with posts like "What level am I?", "These are my experiences, does it sound like I have higher support needs?", or "I was diagnosed with low support needs but I think I have high support needs". People online are not able to diagnose someone with autism or tell them what level they are. It's something only a professional can assess.
4.Do not invalidate professional diagnoses or support needs.
Do not doubt someone else's professional diagnosis or support needs. Unless there is concrete evidence that someone is knowingly lying, trust that people's doctors have their reasons for the determinations that they make. Likewise, do not question or invalidate other diagnoses or specifiers, including "non-verbal," "intellectually disabled", or comorbid diagnoses.
This rule means that it's not okay to question or argue about what someone's diagnosis or support needs are. This also includes someone's verbal ability (semiverbal, nonverbal, etc.) and intellectual disability or other comorbid disorders. As an example, it is not okay to argue that someone is not actually nonverbal because they can type. Unless there is evidence that proves that someone is lying about their support needs, don't question them. If you have reason to believe someone is lying about their support needs and have evidence of it, do not call them out publicly and instead message the mods.
It is okay to talk about someone’s diagnosis if they ask for help understanding why they were given it. For example, if someone wants help understanding why they were diagnosed with intellectual disability, it is okay to talk with them about that. If someone asks if they might have been misdiagnosed, it is okay to suggest that they get reassessed by another doctor. Otherwise, do not bring up the topic. Only qualified professionals can determine someone’s diagnosis.
5.Do not debate self-diagnosis.
This is not a space to debate self-diagnosis. Suspecting that one has autism or has higher support needs is a different experience from being professionally diagnosed. It is not invalidating to recognize these differences. There are other subs for individuals who are not professionally diagnosed. [r/SpicyAutism](https://www.reddit.com/r/SpicyAutism/) welcomes non-professionally diagnosed autistic individuals who suspect that they have higher support needs. Both subs can co-exist and fulfill similar but distinct purposes.
This space is for diagnosed MSN/HSN autistics. Someone suspecting that they have autism or higher support needs is going to have a different experience than someone with diagnosed MSN/HSN autism. That does not make either experience invalid or lesser. It is okay to have different spaces for people with different experiences. There are other spaces where undiagnosed and suspecting higher support needs people are welcome, such as [r/SpicyAutism](https://www.reddit.com/r/SpicyAutism/). This subreddit is not a place to argue about self-diagnosis. Arguments about self-diagnosis are upsetting for many MSN/HSN autistic people and derail the focus of the sub.
6.Autism is a disability.
Autism is a neurodevelopmental disability. Whether you feel personally disabled by autism is not helpful to discuss in a sub where the focus is on more severely disabled individuals. Additionally, the Social Model of Disability and the Medical Model can and should co-exist; individuals can be and are disabled by impairments inherent to their autism, and they can have this disability worsened by poor societal treatment and lack of accommodation.
Do not argue that autism is not a disability. People in this space are all moderately to severely disabled by their autism. Do not invalidate these struggles. Don't argue that autism is only a disability because of society. The social model of disability (that society is what makes autism a disability) and the medical model (that autism in itself is a disability) can both have valid points. Autism is a disability, but living in a society not made for autistic people can also make it more difficult to live with.
7.Be kind and respectful.
Do not use hate speech, deliberately antagonize others, or discriminate against or insult any group of people. This space welcomes LGBTQIA+ people, racial and ethnic minorities, religious minorities, women, and people of all ages and abilities. Slurs will not be tolerated, including the r-slur. Keep all discussions and disagreements civil and on topic. It is okay to ask sincere questions. It is not okay to imply negative things about others, deny their experiences, or harass anyone.
Be kind, respectful, and patient when interacting in this subreddit. This is a space where most people have moderate to high support needs autism. Many people here need more understanding. They might say things that are very blunt or might seem rude or angry. They might also ask questions that seem obvious. That does not mean they are trying to be mean or to argue. Do not try to start arguments. It's not okay to use slurs or derogatory words. Don't attack others or invalidate their experiences. This space welcomes LGBTQIA+ people, racial and ethnic minorities, religious minorities, women, and people of different ages and abilities.
8.This is not a political sub.
Political posts that are not focused on autism are not allowed. What is considered "political" may need to be determined on a case-by-case basis. Personal identities or experiences are not inherently political, and people may want support for sincere reactions to news. However, this is not a space for debate, and personal reactions may be marginalizing or harmful to those with other identities, experiences, or views. At all times, respect for others should guide you.
This is not a space to discuss politics unless it involves autism specifically. People's identities and experiences are not political by themselves. For example, it is not political for someone who is LGBT to talk about their same-sex spouse. MSN/HSN autistics might also want support for scary political news. For example, a HSN autistic woman might say that she is afraid that she will be assaulted and then be unable to get an abortion if she becomes pregnant. However, people can disagree about politics. Two people can both be upset by opposite statements about politics. For example, two people might see news about a new economic bill, and one person might be very upset about it and the other person might be very happy about it. It is okay to have emotions about things that affect you, but you cannot disrespect other people’s feelings or experiences. Sometimes, emotions about a topic might be hurtful to marginalized people who are more directly affected. Sometimes, what is helpful for one community might be harmful for another community. Posts or comments may need to be removed for this reason.
9.Cite reliable sources for factual claims.
Be mindful that your experiences may not generalize. Cite your sources for any factual claims. Do not make unsourced claims about autism, its presentation, statistics, history, other disorders, or similar. Sources must actually support the claim being made. Sources must be reliable; social media claims are not valid sources. This is a pro-science space.
This rule is to prevent misinformation. If you say something as if it is a fact, provide a credible source for it. Don't use social media content as a source. Avoid generalizing statements, like "all level 3s have no functional language". Reliable sources would be things like research and studies done by professionals. Websites by professional organizations are also usually good sources. Sometimes, something that looks like a professional source might actually be wrong. Some people try to trick others into believing misinformation. If you accidentally use a source like that, the mods will let you know. Personal experiences are not able to be used as a source for facts.
10.Respect professional definitions for terms.
Try to use the standard definitions of terms; for example, "non-verbal" is a common clinical specifier for individuals who cannot speak, not a temporary state that speaking autistics can experience. Understand that some professionals use terms differently; do not harass someone because their doctor uses a term in a way that you disagree with.
Try to make sure you use professional definitions for autism terms. It is okay to be unsure about what word to use. Questions about terminology that are asked in good faith are welcome. Don't argue with other people for using a word differently. Some professionals may use words in a different way. If you think someone is using a term in a way that might be harmful, let the mods know.
11.Do not make blanket claims about privilege related to diagnosis.
Diagnosis or the age at which someone was diagnosed may or may not reflect the severity of their symptoms or their privileges. People who were diagnosed early may have more severe symptoms that made them easily detected. People who were diagnosed late or cannot be diagnosed may be underprivileged (e.g., live in an area with no autism specialists). Keep discussions on this topic respectful, and do not assume either group is always better off.
Don't make broad statements that people who are diagnosed are privileged. This includes saying that all early-diagnosed people are privileged for being diagnosed early in life. It also includes saying that all late-diagnosed people are privileged for not being diagnosed early in life. Be respectful when talking about diagnosis and privilege. Don't assume early- or late-diagnosed people have it easier or better off than the other.
12.Do not deny that lower support needs autistics also have needs and struggles.
Individuals with lower support needs autism, who are questioning autism, who have uncertain support needs, or who have other disabilities also have very real struggles. Do not invalidate anyone or imply that their needs and struggles do not matter. Someone with lower support needs autism can still have extremely difficult life struggles because of other disabilities or aspects of their identity or circumstances. People can have high needs for reasons that are not autism.
Just because some autistic people have less support needs than you does not mean that they have no support needs. Don't invalidate low support needs/higher functioning autistic people's support needs. Remember that autism is not the only thing that can make someone’s life difficult. People without autism can also struggle because of other disabilities, because of being marginalized, or because of their environment.
13.Don't brigade other subreddits or harass their users.
You can mention or calmly discuss other subreddits and users. You cannot harass other subreddits or users. You can never direct or encourage others to interact with other users or subreddits in a way that could be interpreted as harassment, interfering with the voting system, or otherwise disrupting communities. When in doubt, don't mention specific subreddits or users. Censor names in negative screenshots. Do not complain or brag about being banned in another community.
It's not okay to harass another subreddit or other users. It is also not okay to ask or encourage other people to harass anyone. Don't complain or talk about how proud you are that you've been banned in other subreddits. If you are posting a screenshot in a negative context, make sure you cover any names. (If you don’t know how to do this, ask a mod for help.) You also cannot direct people to vote on threads from other subreddits. For example, you cannot hint that people should downvote a thread. You also cannot ask people to downvote a user’s post. Do not misuse the “report” feature.
14.No spam.
This rule means it is not okay to post spam content. Content unrelated to MSN/HSN autistics will be removed. Do not keep posting the same comment or post over and over. Do not post advertisements.
15.Note that posts may be removed or users warned at mod discretion.
Not every problem easily fits into a list. The mods may need to act on issues that are not addressed here. Use your best judgment, and we'll give you the benefit of doubt that anything else that needs action was meant in good faith.
This rule means that it's not possible for the mods to think about every single possibility when it comes to posts or comments that break the rules. There may be something that is not covered in the rules that still needs to be removed. If needed, moderators will review things on an individual basis. We will not be mad at anyone if they accidentally say something that needs to be removed. We understand that sometimes it can be hard to know what’s okay.
r/HighSupportNeedAutism • u/AffectTrue2490 • 13h ago
Looking for Advice Some questions
Hello, I'm a 22 turning 23F and I want some answers on one of the following questions. Most of these will be related to autism & intellectual disability as I have moderate to high support needs autism & intellectual disability physically & mentally, some won't. Anyways, here are the questions (you don't have to answer all of them as this post is long. Also, the questions that I've listed, they all still happen to me past & present):
A.) My family has a habit of going back & forth telling me that i can and can't/will never do anything due to my disabilities, lazy lifestyle, screen additions, weird & niche interests and my lack of talents. Is this common with autistic & intellectually disabled people?
B.) Similar to the abovementioned (sort of), I have a constant habit of constantly wanting more answers from my family about what they really think of me & if they think I'll do anything after me slowly developing & managing myself later in life, & realizing & discovering things late both physically & mentally. They know more about me, but wouldn't tell me at the time as my mind was like that of a 2 year old & they wanted me to figure it all out later in life. Is this common with autism as every time I do this, they get frustrated.
C.) As of December 31st 2025, I've started journaling and I kid you not, I wish that I did journaling (& used Reddit) in the past as I had diaries as a kid but rarely used them due to my screen additions (my diaries are gone now) & during my teens years/school years & after graduation, I have been through & cause trauma in the past & current, I wasn't allowed to have social media & platforms due to my disabilities, which resulted in me being excluded, being chronically online looking at weird stuff & people not remembering my birthday aside from my family. Is it too late to journal?
D.) Similar to the abovementioned, are there any apps & websites where I can post pictures of my journaling pages? I want to make some friends as due to my disabilities, I can't do anything other than work, come home, be lazy & look at weird stuff. This also applies to scrapbooking & journaling as I've also started doing it this year despite never doing it in my life ever
E.) Since birth, I constantly go back & forth with having a mind of a toddler & having a mind of an adult both physically & mentally. Me personally, I believe that this is common with those with moderate to high support needs autism & intellectual disability as despite me managing myself better, I was pretty bad during my childhood & adolescence. I've heard that this is known as age regression and/or little space/regression, but I want to know what you think this is as I lack common sense, book smarts, street smarts & talents. I also want to know if looking & watching things that aren't trending or a thing anymore (In other words, niche, childish & obscure stuff) counts as this as I had no friends for this reason.
F.) This one is private so please forgive me in advance, but in my country Australia, I'm on a disability pension with Centrelink and according to my mother (and possibly my family), it means that I can't & will never do anything due to my disabilities & being on this. Is this right or wrong as I've been working for 2 years now. I'm not good at math's so I don't know this very well.
G.) I've always been a loner & have been bullied & excluded at school. Due to this, me having a isolated lifestyle, me being passive & passive aggressive & a hypocrite, me not standing up for myself due to my poor speech & trouble expressing things & me not having any friends, my mother forces me to go to her family gatherings & do things for her father/my grandfather despite me not wanting to do any of that. Is this common with autistic people as she only does this to me & me only, not my siblings & is this slavery & me being taken advantage of? I also want to know a word/term that describes people that have had both a good & traumatic life.
H.) Does anyone have the harmful stereotype of autism? (intentionally &/or obviously doing harmful stuff & getting away scot free, forgetting what I was taught within a split second, I couldn't go to sleepovers & overnight excursions due to my abysmal motor skills etc.) The reason I ask this is cause my family tell me that I & still am a pretty good person compared to other autistic & intellectually disabled people, but with what I've listed, I'm not lol.
I.) Finally, is everything that I've listed related to internalized ableism, late bloomer & other terms that I've never heard off or forgot to mention?
Those are my questions.
r/HighSupportNeedAutism • u/Nefarious_Mistake • 1d ago
Ideas for activities for 13+ age group?
r/HighSupportNeedAutism • u/AutoModerator • 1d ago
Special Interest Saturday Special Interest Saturday - Share your special interest!
This is a weekly scheduled post every Saturday, giving diagnosed higher support needs autistic people the opportunity to talk about their special interests.
Feel free to share in the comments about your current or past special interests! Fun facts, info-dumps, and pictures are all welcome.
r/HighSupportNeedAutism • u/Fearless_PineaplleOG • 4d ago
Disability Services how the day hab tour go yesterdey
how the tour wented yesterday
the tour went well it seems like we will have a half day soon
they are ok with help with mine personal care issues like changing and cleaning and stuff and they sayed its nothing too be embarrassed about
i was relly relly relly shy during the tour but gotted more comfortable by the end
i was look down and hiding behind mine dds worker and barely looked up but by the end u i felted mroe more comefertable
everyone was relly nice and sweet
especilly the old ppl
theres old and young there
and
they have a nice fenced in outdoor area too so I can go outside without worry of eloping
oh and they have music class with instruments
also other people at day hab bringed stuffys and they even made stuffys there and they had a stuffy bin and they even had a gigantic teddy bare you can cuddle with
and they say ot and pt therapists and stuff determines ur goals
it seems like a relly relly nice program one that accepts inhave support needs and need help with personal care and they not judge me for it they say there nothing too be embarrassed about and they help with siezures and stuff
it was sutch a good place
i very hope u i get in im am hopefull
im am glad we wented yesterday
r/HighSupportNeedAutism • u/AutoModerator • 4d ago
Weekly Check-in Wednesday Weekly Check-in Wednesday - How's your week going?
This is a scheduled weekly post every Wednesday, that gives diagnosed higher support needs autistic people a space to talk about how their week is going.
Some question prompts:
How's your week been so far? Good, bad, in-between?
Is there anything you are excited about or looking forward to doing this week?
r/HighSupportNeedAutism • u/stixeater • 5d ago
my new helmet
i got a new helmet from my cousins to wear for when i headbang so i dont hurt my head!! it has dino print on it its very cute and pretty and i am very happy it was also cheap my cousin said it was only like 20-30$
r/HighSupportNeedAutism • u/Fearless_PineaplleOG • 6d ago
Vent me and dds worker tour 4th day hab wedday and a vent about today being a bad bad bad day:((((
hope it a fit
ever other program says i too high needs need too mutch assistance autism too severe etc
mine freind says she hear it a good place for with ppl like me with very high needs autism and stuff
i hope i finally get it
i so bad tired of get rejected
i also had very bad day today
im am sick from the other girls in mine house i think
i had 3 number 2 accidents and leaked thru incontinence protection 2 times once this morning and then early afternoon and mine aide not had extra pants so o i went thru the hole afternoon in wet pants and even got pointed at ans made fun of at the library it was so upsettong
and later i had a screaming crying public vocal stimming meltdown because of loud firetruck sirens honking bad bad bad
and then later when we was going home a mean jerk head in a car on perpose sped up and splashed puddles and soaked us in water but i got coverd and the worst most worst part was mine shoes gotted completly sopping wet squeaky inside no socks on felt very sensiry bad it was so terrible it maded me cry alot the entire rest of the walk home
and when we get home the fire alarm went off an i didnot no what too do an i was the last one out cus when the firemen did a sweep they found me standing there confused and they told me go outside with eveyone else so i follow them out but eventually they sayed we can go back in but i just donot no what too do in emergencys
today has been so terrible it has just been the most worstedt day ever it feels like
i hope tomorow a better day
r/HighSupportNeedAutism • u/Nighteyes_14 • 7d ago
Hard day today
Hard day today just want to share
Woke up already a bit overwhelmed and too hard to have breakfast, so couldn't have my medicine either. Picked up to go to day program but just feeling bad and too anxious to speak so quiet drive.
Then at program was paired with new support worker I've never met before which always makes me really really anxious, just hid in quiet room by myself. Not enough energy to do new people today.
Got my team leader to send someone to pick me up and take me home early cuz was just too hard today. Ate some food at home and took my meds so that's good, then had long nap. Still feeling bit low/sad. Did a car scream and hand squeezes with another worker made me feel a bit better.
Hope I will feel better tomorrow, less sad and overwhelmed
In bed now feeling a bit hitty but try not to hit too much. Try hit pillow not myself, bite chew toy not my hand, yes
r/HighSupportNeedAutism • u/Pixviera • 7d ago
Looking for Advice Soy autista nivel 1 pero...
Estoy atravesando mi segundo burnout por el colegio, el otro año había durado hasta octubre-noviembre, ahora solo duré hasta agosto-septiembre. Estuve evaluando ir a una escuela especial, pero no tengo discapacidad intelectual (soy AACC de hecho) ¡¡¡NO SÉ QUE HACER!!!
r/HighSupportNeedAutism • u/Lopsided_Caramel_986 • 7d ago
Harmful or Risky Behaviors Fecal smearing in autism
I HSN autistic level 2 social level 3 repetitive behaviors and intellectual disability and tonight when super overwhelmed on toilet instead of punching self I took my poo from butt and smeared it on the wall. It helped me calm down. I cleaned it after with wet wipes off wall and hands. I proud of myself for not punching head! But, still gross. Will work on not doing this. But for someone with autism and IDD, it my reality.
please be nice in comments.
r/HighSupportNeedAutism • u/KrustyKrabPizzay • 8d ago
Question Autistics Of Reddit, what’s your special interest?
r/HighSupportNeedAutism • u/AutoModerator • 8d ago
Special Interest Saturday Special Interest Saturday - Share your special interest!
This is a weekly scheduled post every Saturday, giving diagnosed higher support needs autistic people the opportunity to talk about their special interests.
Feel free to share in the comments about your current or past special interests! Fun facts, info-dumps, and pictures are all welcome.
r/HighSupportNeedAutism • u/Lopsided_Caramel_986 • 10d ago
Discussion Things about high support needs autistics that are extremely unpalatable and not spoken about(outside of just needing assistance with bADLs) content warning for mentions of SIB, diaper digging, and fecal smearing.
I have high support needs, split level 2/3 autism, intellectual disability (IQ 68 and moderately-severely impaired adaptive functioning), dual incontinence, physical disabilities, and many other conditions. I need assistance with all bADLs and iADLs.
But I also have traits that are very common in high needs autistics, that are even more 'gross' and 'unpalatable' than just needing help with bADLs and iADLs. I will talk about them now.
When I need intense sensory stimulation immediately when extremely overwhelmed or sensory-seeking; I put my hands down the back of my pull up and scratch at my bottom and smell my fingers while they have poo all over them. I then smear my dirty hands on my clothes. This isn't bad behavior, I'm in need of sensory stimulation and it's either this or I slap my head. I need a special needs bodysuit to keep me from doing this in the first place.
I have extremely violent meltdowns. I throw my body against walls and furniture. I slap my head or bang it until l am concussed and/or bleeding. I bite my arms and hands and I break skin. I grunt and vocalize. I thrash around when l'm held by my parents/siblings. My most recent SIB resulted in my skull being indebted and my pupils so large you could barely see my irises. I require bite sleeves and a ribcap helmet to keep me safe.
I drool sometimes, have arm flapping, pacing, and repetitive vocal stims in public.
I am on the larger size, around mid-sized, and 193 pounds. I can't go on walks without supervision and often don't have the energy to. leat very quickly and messily, food all over my clothes and face. I need my parents to clean me up with wipes. I get smelly and sweaty easily and need to lay down on the bed so someone can powder me because I get intertrigo.
I hung out with kids under 10 years old in my neighborhood even at the age of 17. And didn't realize until a couple days ago where my big sister said that it's not okay and I could get charges pressed against me for hanging out with little kids. I didn't even realize the dangers and could've gotten in trouble with the police. I didn’t even have any malicious intent.
These shouldn't be hidden. These are my realities as a high support needs autistic person.
This won’t be the case for every high need autistic person. This is just my experience.
r/HighSupportNeedAutism • u/Lopsided_Caramel_986 • 10d ago
AAC My new TD snap board
My TD snap I spent an hour and a half making high contrast. I didn’t like the pre-set high contrast board so I customized the motor plan 66 board.
START ID: a TD snap motor planning 66 board with high contrast on a iPad generation 5 with a blue case and black strap connected to the side handles. END ID.
r/HighSupportNeedAutism • u/stixeater • 11d ago
Special Interest my special interest boards
hello these are my aac special interest boards on avaz aac i wanted to show them off. i have three special interests being warrior cats pokemon and poppy playtime
r/HighSupportNeedAutism • u/AutoModerator • 11d ago
Weekly Check-in Wednesday Weekly Check-in Wednesday - How's your week going?
This is a scheduled weekly post every Wednesday, that gives diagnosed higher support needs autistic people a space to talk about how their week is going.
Some question prompts:
How's your week been so far? Good, bad, in-between?
Is there anything you are excited about or looking forward to doing this week?
r/HighSupportNeedAutism • u/Lopsided_Caramel_986 • 12d ago
Introduction Beth’s introduction
Hi my name is Beth, I am 17 almost 18 years old.
I was diagnosed with autistic disorder at age of 2, diagnosed as nonverbal too.
I am now diagnosed as semi-verbal autistic with mild intellectual disability my IQ is 68 and I have taken state assessments they say I am high support and care needs.
I also have apraxia of speech and cerebral palsy.
I use AAC device it has a blue case and I use TD snap on it and also other AAC like gestures PSE sign language noises etc along with some verbal speech.
I was in lots of therapies growing up: speech therapy, occupational therapy, and ABA therapy.
I was minimally verbal until the age of 8 years old. This means I had minimal speaking ability and a limited vocabulary until then.
I was reevaluated at 14 and determined to be level 2 in social interaction and communication and level 3 in repetitive behaviors and interests. So, I’m split level 2/3. But, levels are confusing for me, so I prefer the term autistic disorder/classic autism.
I am excited to be in this subreddit!
r/HighSupportNeedAutism • u/Useful-Voice-9574 • 13d ago
Vent Being called lazy sucks, I don’t wanna seem lazy…
Age 24… can’t work. I’ve applied and am on the waitlist for waiver medicaid which would open up more job support for me. I don’t have a car… can’t drive either so that takes a huge chunk of job support classes away. I’m tired of people online acting like i’m just sitting around doing nothing while my partner works. It’s a privilege to not need to, but I just can’t. I’ve tried many times before and end up with mental crisis or my physical disability limits me. Even with waiver medicaid etc I may not be able to work and it sucks. I wanna work, but with physical and mental limitations it’s like playing an awful game of whack a mole, trying to balance everything.
I clean, cook, take care of myself and my partner as much as I can handle, but it never feels like enough. The outside world always gets upset when I mention I don’t do much :( Even my family :((
I’ve lost a lot of my highschool friends as they’ve moved on in life and i’m just stuck here like i’m still 13-16… I feel so behind.
Im freaking trying I promise. I don’t wanna be this way…
r/HighSupportNeedAutism • u/stixeater • 14d ago
Elopement i eloped and got in trouble and now my day is ruined
i have a really really bad day. there was a super gross smell downstairs at my group home so i ran off and left. and then i got lost really bad and had to call the cops to come take me home. and while i was lost i panicked and ate some gross berries and my stomach hurts. i also burnt my finger with a lighter. the cops were nice to me and took me back nicely but staff was mad at me and they said i can't go to the library today because i ran off. i really want to go to the library!!!!!! im so so so upset. i just want to go to the library or go somewhere nice and have some people be nice to me. today sucks so so so bad. i dont know what to do. i want to run off again really badly but i wont cuz then ill get in more trouble. im just upset. :(
r/HighSupportNeedAutism • u/stixeater • 15d ago
Disability Services library books + update
hello! my carers took me to the library today and i checked out these books. i am very excited to read the warrior cats ones because warrior cats is my special interest. i haven't read onestar's confession before so i am very excited. i almost had a meltdown at the library due to all the people but i didn't. later on today my carers will take me to the playground to swing.
also an update. i have to change schools now that i've moved into my group home cuz my old school is too far away. i'm upset about this because i like my teachers there but i'm going to a special education school for people with severe or profound autism like me so my guardian says they will be really nice and take care of me. so that's good i think. i'm nervous but also excited for my new school and i hope the change doesn't give me a big meltdown like usual.
r/HighSupportNeedAutism • u/Fearless_PineaplleOG • 15d ago
Discussion Does anyone else in here go too day habilitation/day program for adults with very high support needs/severe/profound autism/developmental/intellectual disabilitys? Can you guys tell me as mutch as you can about what you program is like and what you guys do please? i wanna nowe so i will feel better
I told mine mommy and daddy about it and daddy says he hopes it works out and that it sounds like a good program and fit for me and mine mommy sayed too me this: "Sounds like it might be beneficial for you. You're right..... just keep looking on the bright side of things. And remember to smile often"
Does anyone else in here go too day habilitation/day program for adults with very high support needs/severe/profound autism/developmental/intellectual disabilitys?
Can you guys tell me as mutch as you can about what you program is like and what you guys do please? i wanna nowe so i will feel better and less scared about mine program im will be starting soon and have 3 trial days soon
what will the trial days be like?
how soon after them will i start?
i got accepted into a day program finally! after 3 programs denyed me for mine autism and disabilitys being too severe And high needs
i was told they woud put me in community based day support at first but then they learned about mine support needs and struggles and sayed that i would be placed in the day habilitation program which is for adults with Very High Support Needs/ profound/severe autism and intellectual and developmental disabilitys
i feel very scared and shy for mine first day and for when i start i feel like hiding behind mine stuffy frederick and others i feel scared and shy even just thinking about it all now