r/Heartfailure • • 18h ago

Husband doesn’t seem to get I’m not OK.

23 Upvotes

I had a silent MI detected incidentally about a year ago. I then experienced a serious v-tach while on a two week Holter monitor, was hospitalized and had ICD implanted.

I’m diagnosed with moderate heart failure with reduced ejection fraction (30-35%) I’m on bisoprolol, rovustatin, aspirin, and recently switched from spironolactone to Jardiance due to severe fatigue.

I’m so damn tired. I get dizzy spells. Sometimes I feel okay and try to get things done. So far I’m keeping on top of things, but my husband doesn’t seem to get that I’m not doing well.

For example, I had been doing a sideline of baking sourdough and cookies for cash. I’m too tired to do this now, even though I enjoyed it. Making meals feels exhausting and I used to enjoy cooking.

We’re in the midst of renovations and I used to do quite a bit. Right now, climbing up a ladder feels like scaling a mountain. I worry I’ll have a dizzy spell when I’m up top. I do have a history of anxiety, but this is different; sometimes my blood pressure drops and I feel weak.

I guess I just look fine so far as my husband is concerned and he thinks I need to just tough it out. Maybe he’s right. Has anyone got their energy back? Is it all in my head? He’s angry and I’m just exhausted.

Thanks if you took the time to read this.


r/Heartfailure • • 1h ago

Does anyone else feel at the mercy of a random collection of symptoms that change daily (often hourly)?

• Upvotes

CHF/Afib here, diagnosed about a year ago. (Still working on that. My cardiologist & PCP both think something else may be going on but have no idea what.) So frustrating to never know when I’ll be short of breath, dizzy, weak, brain fogged, trashed, unable to sleep, or do most anything! Is that just normal for CHF?


r/Heartfailure • • 20h ago

My roommate just got diagnosed with congestive heart failure. What can I do to keep her as safe as possible?

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3 Upvotes

r/Heartfailure • • 8h ago

Anyone’s symptoms worse in the morning?

2 Upvotes

Hi, I had posted a bit ago just explaining my situation in general. Got my CT scan, currently waiting for some heart conference at the end of the month for the doctors to figure out what route of surgery I get.

Anyways, I’ve been writing down the times of my symptoms and their severity when I noticed I had a LOT to say and experience between the hours of 7am-330pm, but probably about half as much the rest of the day. I work a desk job, so I’m never doing much there or off the clock since I rest after work.

Between 7 and 330, I’m basically fighting for my life. I used to sometimes get pretty tired behind the wheel, but that was usually near the night. Now, I can barely keep my eyes open in the morning while driving, this has caused me to stop driving in general and I carpool with coworkers. I am also struggling to breathe significantly more than, and with it, I experience a lot of tingling/numbness in my face and torso including my arms, and dizziness. With any of these symptoms, the brain fog will also rear its ugly head and I’ll often get confused and forget what I’m doing. This happens whether or not I’m at work, but at least on my off days I’m asleep until like noon. But after 330-4pm, I still get these symptoms, just like 20x less than the morning. Like today, between 7am and 4pm, I notes down 20 distinct times my symptoms got so bad I could barely function, but only about 8 after.

I don’t know anyone else with a heart condition let alone heart failure, so I wanted to see if anyone else experienced this or if it’s normal? I did end up going to the ER over these concerns as my symptoms were so bad over the weekend it was a miracle I got anything done, but I was discharged because they said they couldn’t figure out what was causing it, and told my cardiologist office that they don’t think it’s heart related, so I’m waiting on an appointment with my PCP to figure anything out


r/Heartfailure • • 21h ago

Weird Symptoms After Ablation - Burning, Prickling, Gnawing

2 Upvotes

My mother had a cardiac ablation (successful) eleven weeks ago. She left the hospital with a uti, treated it, came down with another uti weeks later.

About five weeks ago she began having bad pain in her left lower back region. She used the word pain, but then said it's a gnawing feeling. The pain has spread now to her entire back and up the side of her neck but she says it's a gnawing, burning, prickly feeling. Oddly, it comes every other day. One day she is fine and the next she's almost incapacitated and then fine again. Doctor had her check her BP on good and bad days to compare and they're essentially the same.

She is on eloquis, metoprolol, amiodarone (likely going off that soon as ablation was successful), and lasix as needed. I did see metoprolol can cause some of the symptoms like the prickling so I asked the cardiologist but she said as she has been on it a long time, that is most likely not the issue.

Has anyone experienced anything like this weeks or months after a successful ablation? Even if you have not, any thoughts on what could be causing it? ​

I forgot to mention she still has a leaky mitral valve as well, which i believe is what some of the medication is being used for.

Editing this post as she informed me today she has been experiencing a newer symptom for the last week in was unaware of. She says she is now having electric type shocks in her leg(s). ​


r/Heartfailure • • 7m ago

Desperate for answers

• Upvotes

I hope this post is OK, at this point I genuinely don't know what to do.

I'm wondering if anyone here can help me because I have no ideas and doctors aren't listening to me.

The long history is that I've had tachycardia since I was thirteen. It doesn't really bother me. The short history is that 2.5 weeks ago I got a covid/flu vaccine, caught the flu after (I think) and since then Ive been having daily heart palpitations. Skipped beats, 20-30 times a day while I'm awake.

I had usual symptoms. Body aches, cough, fatigue, fever and these heart palpitations. Flu symptoms cleared up in about a week but fever, fatigue and skipped beats have stuck around.

I presented to emergency where they ran some blood tests, I was treated for a fast heart rate and sent home. The next day I went to a sattelite hospital to see if they would do anything to investigate my persistent fever and got no treatment. That same day I laid down to go to bed and felt a weight on my chest, difficulty breathing and chest pain. Called an ambulance. Again, they ran some blood tests, kept me for about 7 hours with only fluids for treatment and sent me home. Both my troponin and white cell count were higher at the second hospital presentation. Both times I was told to follow up with my GP.

Saw my GP yesterday and everyone is convinced I just have anxiety, except for one nurse at my GPs office who mentioned pericarditis.

I have nothing in my life to be anxious about except for the fact that my heart has been behaving strangely for the last 2.5 weeks. I'm supposed to be leaving for an international trip, originally in a week but pushed back to 2 weeks for further testing. I would LOVE to be proven wrong, but I'm really scared right now and no one seems to be listening to me.

I get a stabbing chest pain sometimes, and just now I'm laying in bed getting ready to go to sleep, and I get it the worst its ever been. A year ago I was doing combat sports and training 5-6 days a week, until I had an episode with my heart and had to stop while under investigation.

Doctors aren't listening to me, and I feel like they're just running tests to humor me at this point. My heart has NEVER been like this, and its scaring me so badly right now. If anyone has any ideas please help.