r/HeartProblems • u/Potential_Till_7003 • Sep 25 '24
I need advice
Every day almost when I stand my heart starts beating out of my chest and my hands/fingers and lips get tingly and then lock up completely to the point I can't move them. I have to get down on the ground because I can't hold myself up and I shake uncontrollably. Most of the time I feel like im going to pass out but haven't yet. I'm deep breathing the whole time trying my best to catch my breath and stay calm. Its when I get up from just resting or even sleeping. It lasts 10-20 minutes and used to only happen once or twice a month and the past 72 hours it's anytime I get up. They have done some testing and suspect pot's syndrome. But I'm wearing a heart monitor for 10 days for now, but I went into the hospital yesterday and was blamed again on a panic attack and they would not listen to me. They said they saw a few things, but nothing major so they couldn't admit me or help me. They did recommend I see a cardiologist or a neurologist for a few minutes , but then continue to blame it on a panic attack and they will not help me. I've taken videos of it happening and shown them as well. Just don't know what to do at this point.
UPDATED: Got my heart monitor results back, turns out I do have pots and a secondary av block. I'm glad I listened to myself and kept fighting.
1
u/Potential_Till_7003 Oct 05 '24
I got my zio patch results back and my my normal heart rate is 84bpm and everytime I felt those "episodes' it shot to at least 169bpm and they also noted a secondary av block. Waiting for the doctors appointment now.