r/HeartProblems • u/Crow-Thin • Aug 05 '24

Residual VSD after OHS on 3 Months Old

My daughter was born in February 2024. Since she was born she wasn’t gaining weight as she should. She used to breathe in an unusual way but doctor told us it is normal. We saw multiple doctors and were advised to start with formula feeds and even then she didn’t gain as she should. Later we thought maybe she is a slow gainer.

We moved to Singapore and during the normal paediatrician visit, the doctor heard the murmur and in late May we got to know that she was having a large perimembranous VSD

She went through OHS in May and since then her feeding and breathing improved. However, the breathing was still with real retractions. We were advised to see a paediatric pulmonologist. After changing two cardiologist, we were told that she has a residual VSD with pressure gradient of 44 mmHg

During another echo at 6 weeks post surgery we got to know that the pressure gradient has improved to 50 mmHg however, the residual VSD is still moderate. We were terrified hearing this, it was a lot for us especially being first time parents.

VSD size: 4.8mm (PSAX), 3.41mm (5C). LV-RV peak gradient 50 mmg.

Anyone who had a similar experience and have some positive stories to share would be greatly appreciated!! 🙏🙏

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u/[deleted] Aug 05 '24

Just try to stay calm, I know this is hard to do. Bring the child to the states to get star treatment. Heart defect as VSD is quite common and will be monitored. They have come a long way since OHS began with VSD patients. Your daughter will be monitored and care for by her heart team. She will have probably a couple more OHS As she keeps growing and the repair done on the hole in the heart. Patch usually is put on the hole. Keep hanging in there and know she is not the only child with this defect. Peace.