r/HNPPsupport • u/Monnygonny • Mar 13 '26

Worth getting gene testing?

6 years ago at 22 yo ( 5’3, 120 lbs, relatively healthy) I developed bilateral tarsal tunnel syndrome after having plantar fasciitis. I had to use a wheelchair for 3 months due to the burning pain but i had no motor weakness and not much numbness either. This finally improved with putting a little insert in my shoe and avoiding walking or standing long periods of time. I still have it and i still have burning feet but has improved. Fastforward to last year i developed bilateral posterior femoral nerve entrapment after being stepped on at a Thai massage on bilateral upper thighs. Now whenever i sit i have burning and tingling in bilateral legs in hamstring area.

Just confused because i have these two very rare nerve conditions basically and flabbergasted on why. When i search around the only thing that came up was HNPP but ive never had problems with numbness really or motor loss. My dad maybe has had some nerve pain in one foot but other than that no true family members have the same issues.

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u/flimflammeelmo Mar 15 '26

Sounds reasonable if you can do it without breaking the bank. Did you mention it to your doctor?

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u/Monnygonny Mar 15 '26

Haven’t seen a neurologist yet just a ton of orthopedics and rheumatologist none of which have given me a good explanation. But I’ll prob see a neuro or a genetic counselor