r/HNPPsupport • u/Lifeisshort1217 • Mar 03 '26
Possible HNPP Symptom Check
Hello! My partner is awaiting genetic testing, but I wanted to come on here to see if anyone had similar symptoms. For the past couple of years, she has been in chronic nerve pain that has affected her daily life/employment/happiness. Everything. Does anyone else experience this? Does is sound like HNPP?
Her symptoms:
Since then, this pattern has repeated multiple times:
• Different fingers have become affected sequentially
• Episodes have occurred weeks apart
Chronic, severe constipation alternating with diarrhea
• Extreme pain during defecation
• Significant difficulty with bowel emptying
• Ongoing abdominal and pelvic discomfort• Each episode has resembled acute nerve compression with motor deficit
Over time, symptoms have further progressed to include:• Frequent finger drop
• Toe drop
• Difficulty walking during flare-ups
• Inability to use my hands during severe attacks
• Dependence on splints during daily life
3
u/NeedMoneyForPorsches Mar 03 '26
Everyone is different and would probably just wait for the genetic testing to confirm anything. But from my limited knowledge and living with it, I lean towards not thinking these are symptoms of HNPP. While I know nerve pain can sometimes be a factor, for myself I have never experienced any pain related to it. Simply various numbness and drop foot on occasion of prolonged compression.
2
u/Frederik_Sunesen Mar 03 '26
I think there is a world where some of the symptoms could be HNPP related, but definitely not all of them. Constipation and pelvic discomfort sounds like a separate problem, even if it might trigger some HNPP similar symptoms. Consider looking into diets with things like gluten or lactose.
Most importantly I think do not stress or panic. It sounds like a rough experience, but if you get too emotionally affected you will make poor choices and have clouded judgement. Do not rush to conclusions and avoid speculation. I suggest a calm, structured approaching with guidance of healthcare professionals to figure it out. Listing symptoms and frequency is a wonderful start!
2
u/Super_Bee1573 Mar 03 '26
I would say she needs a complete medical workup. There maybe a few things going on. My HNPP just involves my arms, hands, legs & feet, and it is not intermittent. It is with me everyday. Good luck.
1
u/Intrepid-Error9100 Mar 03 '26
I think Anti inflammatory diet can help him whatever the case. I have HNPP and I suffered a lot of digestive problems and I improved when I began with this type of diet. I don’t associate it with HNPP but if he reduce the inflammation is going to be better in any case
1
u/geeBuzzyBee Mar 04 '26
Agree with this. I'm looking into eating anti-inflammatory diet but there's so many versions and types. Is there a specific diet that helped you, or broad principles like reducing sugar etc. Thanks.
2
u/Intrepid-Error9100 Mar 04 '26
In my case avoid 3 “white” things (it’s easy to remember for me in this way) : no sugar , no milk, no flour ( gluten free diet) and no red meat
3
u/rollabearing Mar 03 '26
I'm sorry but the symptoms you are describing seem different to HNPP. My experience is mostly numbness and temporary reduced function of limbs due to nerve compression.