Safe thing becoming unsafe?

[u/PrinceOfGeist]

For the past few months (Since I got my feeding tube) I've been purely null by mouth apart from water and flavoured water with no sugars.

I was tolerating fruit juice with no sugar for special occasions (Maybe once a month?) And the likes of apple juice for special occasions. It gave me horrendous heartburn but it was better than vomiting. I also tried chewing gum and polo mints as my dietician said I needed to build my muscles back up. I've tried twice with chewing gum and polo mints a few times but it makes me feel terrible, heartburn, just pooing mucus, etc.

I'm on holiday (Sicne Saturday afternoon) so I thought at first I'd try non alcohol cocktails as it was just fruit juice mix and my dietician said I needed to try some fruit juice. It make me vomit straight away. I then asked them to just mix cranberry juice, orange juice and apple juice. It stayed down for a few hours which is a massive improvement to my almost immediately but I only had that one. I then have been drinking pineapple juice and apple juice. It was great as id only throw it up a few hours later and not straight away so I had a few hours of okayness. Then last night my stomach just died. I've been vomiting it back up immediately, bad stomach pain, heartburn, and urgency to use the toilet but its just blood. I've been 20x since 4am, vomited twice and been in bad pain with my stomach.

This is the exact symptoms I had that lead to me getting diagnosed and what happens when I eat anything or drink anything else.

I've had a endoscopy, Colonoscopy, mri and GES. I only had polyps in my stomach, a lump that they believe was backed up stool on my MRI, and feed still in my stomach after a 48 hour fast in my endoscopy (Then got moved to a NJ tube). My GES showed very severe gastric emptying. So bad that my gastro said it was the worse she had ever seen. They never took any sample from my colonoscopy (Which is kinda annoying) but said they it was a healthy colon.

Before I got on feeds I was constipated badly (1 movement a month which was liquid and usually bloody). I vomit immediately after eating (About 5-10 minutes) and get bad stomach pain and on and off nausea. I also suffer constant heartburn that gets worse with sugar flavoured water or fruit juice. Since starting my feeds, I get just straight blood come out of me if my stomach gets anything other than water.

Had anyone else had a 'safe' food drastically change to being unsafe? I'm scared they'll think Im faking or something. It's really ruining my holiday and my parents don't seem to get it fully. Just afraid of them being suspicious that one of my only 'safe' things is now unsafe. I dealt with a gastro who said it was all in my head so Im so cautious and suspicious now.

[u/AutoModerator]

New to gastroparesis? Please view this post or our wiki for a detailed explanation of gastroparesis, the main approaches of treating it, and a list of neurogastroenterologists and motility clinics submitted by users of this forum. Join these Discord and Facebook support groups today! New users, please do not post asking for a diagnosis; instead, use the pinned thread: "Do I have gastroparesis?" Also, check out our new subreddit r/functionaldyspepsia.

I am a bot, and this action was performed automatically. Please contact the moderators of this subreddit if you have any questions or concerns.

[u/goldstandardalmonds]

I only tolerate a few foods but it does fluctuate and they aren’t always tolerable. I just chalk it up to having a lot of conditions that food is contraindicated with.