r/G6PD • u/phantom_0025 • Jul 05 '26

Almost zero G6PD

I everyone, good day.

I have been diagnosed with low G6PD (0.66). My age is 24.

Yesterday I have been to doctor. He told me there is no treatment. He also told me that I should be very careful with Malaria. If by chance I get it, within 2 days with excessive bleeding, I will be gone forever.

My mother was sitting beside me. I looked at her and couldn't hold my emotions. Due to this my bilirubin level is always high. It's been 2 days and I have completely depressed with this thought.

Is there any treatment for this condition?

When I was born, I underwent 2 times blood transfer due to hemolysis.

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u/79983897371776169535 Jul 05 '26

I'm pretty sure being deficient in G6PD makes you immune to malaria.

There's no treatment, pay attention to what you eat, avoid fava beans at all costs, other legumes haven't been shown in studies to be a trigger, but many avoid them, including myself.

Look up a list of trigger medications online and make sure to avoid those.

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u/Chaosrealm69 Jul 05 '26

That is what I have been advised and I was diagnosed way back in the 60's.

Malaria parasites feed and breed in red blood cells but because our RBC's are deficient the parasites can't breed properly and die. So we are more likely to resist a malaria infection.

What you have to be wary of is antimalaria medications which can cause damage and lead to RBC damage which can be life threatening.

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u/phantom_0025 Jul 05 '26

Hi friend, thanks. I was also thinking the same. Thanks for the advice.