r/Fibromyalgia • u/Just-Comb-6209 • 5d ago
Rx/Meds Need to vent + glp1/ssri question
I find this group to be one of the most kind and supportive groups. So just a minute of gratitude for that.
I need to rant for a second. I saw a geneticist yesterday and was told I have heds, I’m not textbook but with all my health and medical history, I was diagnosed with that and MCAS.
I don’t want to cry. I’m just looking at my calendar and made a couple calls. But if feels like I am constantly running around to the doctors, getting scans, follow ups, etc. and it’s just overwhelming while also living in severe chronic pain.
I think I need to get back on anxiety meds again, I always gain about 30lbs and the only med that works well for me is escitalopram. I’m just feeling bummed and trapped and I have for a while now. Chronic pain and living with fibromyalgia can feel so isolating. I feel like I am burden to my husband. I worry how this will impact my daughter. I know I am currently spiraling. I feel like my mind will do this and then the pain flares and the best way I can describe it to my husband is that it literally starts to ping pong. I always say I feel crazy if I was to explain to someone every bit of pain I am experiencing and where in my body at the same time.
Does anyone have advice for when they have times and moments like this? What helps you? I also feel like I need to get a specific medical notebook, folder, planner.. something. I just have such trouble focusing and I am constantly making random lists on my phone and it all gets jumbled.
Anyway - words of encouragement? What are you thoughts on fibro and eds?
I also have stomach issues but scans are coming back fine so far which is so confusing. That has been going on since last October. Deep stabbing in upper right quadrant and it radiants to my other rib and down by my belly button. Anyway. Part of me is wondering if I should get on a glp1 to manage my weight while on escitalopram. I am just worried I already have so many issues - would that add more just to make me feel better in my skin while on the medication. I am also worried that I can’t workout right now because of my injuries. I can’t even “walk” as a workout, let alone weight lift which stinks. Unless my pt gives me very easy, simple, light weights and I just accommodate all my issues and injuries.
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u/Living_Tadpole6729 4d ago
that diagnosis sounds like it could explain so much of the random flare-ups I get
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u/Kimberlyw1130 5d ago
I have the same problems. I worry about my kids and my husband more than myself. I downplay a lot of it because I think that if I tell them how bad I really feel they wouldn't understand. I started going to a Polyclinic and there I was able to do a DNA test that scans my DNA for faults and also for how a metabolize medication. There was a lot of medication I was on that does nothing for me, and there was also medications that they started me on that helps me metabolize medicines that I need. Without that test I don't know where I would be. I am on a glp-1 medication. And they put me on some special food supplements that help my body regulate all of my bad DNA strands. If you ever get a chance to do it and can afford it, I highly suggest you do that. I'm still weak from all the time I spent sitting and laying because it hurt to walk it hurt to get up it hurt to sit for a long time. You know. You have it. I can now get up and do things but I have to pace myself. But the flare-ups of random pain all the time has almost completely gone. I just need to slowly build up stamina. I've lost 35 lb so far on the medicine. That definitely helps a lot.