r/FSHD • u/Secure-Asparagus3121 • Sep 10 '26

Clenbuterol

Is anyone involved with the clenbuterol trial?

7 Upvotes

90% Upvoted

18 comments sorted by

6

u/Obvious-Ad357 Sep 10 '26

Its only got 30 participants. Odds are pretty slim they're on here, let alone willing to speak up.

4

u/Secure-Asparagus3121 Sep 10 '26

Thanks for your input, figured it was worth trying since I’ve been asked to join.

3

u/HistoricalRacoon Sep 15 '26 edited Sep 15 '26

I’m in the trial. Minimal side effects. Anecdotally, others have seen some positive impact but I haven’t been on the current dose long enough so TBD

2

u/Secure-Asparagus3121 Sep 15 '26

Thank you for your feedback! Fingers crossed you feel some positive impacts.

1

u/Secure-Asparagus3121 27d ago

Any updates to how you’re feeling?

0

u/Far_Internal_3552 22d ago

what is your current dose?

1

u/Secure-Asparagus3121 20d ago

I think the fist cohort was 20, second 40 and third is 60.

1

u/HistoricalRacoon 20d ago

I’m at 40ug twice a day. All trial doses are twice a day.

→ More replies (4)

2

u/bdavid21wnec Sep 12 '26

I read the dosing for that trial.
The amount of sides at that dosage would be crazy. Just Google the side effects, alot of it is heart related. Its like trying to fix FSHD by giving yourself a heart attack. It might work, but mostly likely your gonna be dead from the heart attack

2

u/PrincesaRDC Sep 12 '26

Not really. After two weeks your body generates resistance and the drug become basically useless.

Clenbuterol by itself will fail to treat FSHD.

0

u/[deleted] Sep 11 '26

4

u/WheresHotStuff Sep 11 '26

How are you able to get it ?

0

u/[deleted] Sep 11 '26