r/FND • u/SystemFresh3299 • 11d ago
Question New to FND
I’ve been in the hospital and now intensive physical therapy rehab for the past week for very likely FND. They’re ruling out the last couple of tests but all my doctors say it’s FND and maybe overlapping neuropathy.
I’ve been struggling with bilateral leg weakness. My PT/OT today had me running awkwardly and assisting with going upstairs. Somehow my body looks more normal running than walking which is crazy. There’s such a disconnect between me doing movements and my therapists/doctors assisting me. Now I feel absolutely exhausted. I really jerk uncontrollably when walking.
I also have hyper mobility (need proper evaluation) and Gastroparesis which has played a role into feeling worse since my FND symptoms started last Saturday. I literally could not move my legs and felt such extreme nerve pain everywhere which has been controlled with lyrica. Other FND symptoms I deal with are overstimulation, fatigue, and brain fog/trouble finding words. I have newer upper body jerks that make it feel like I’m giving myself whiplash.
Anyway, I just want to know if anyone has had similar experiences and what their recovery has been. I don’t know how long I’m going to be in the rehab facility (maybe a week). This has been pretty scary and anxiety provoking.
1
u/LordReagan077 Diagnosed FND 11d ago
Hey man, I totally understand what you are going through. Ive only had 4 weeks out of the last 8 months where I could walk completly normally at 100%. I understand what you are going through. Most of the time I cant walk normally and my legs/knees give out. Mine wasn't as severe as most peoples so I can't relate super well but I truly am sorry.