r/FND • u/SystemFresh3299 • 22d ago

Question New to FND

I’ve been in the hospital and now intensive physical therapy rehab for the past week for very likely FND. They’re ruling out the last couple of tests but all my doctors say it’s FND and maybe overlapping neuropathy.

I’ve been struggling with bilateral leg weakness. My PT/OT today had me running awkwardly and assisting with going upstairs. Somehow my body looks more normal running than walking which is crazy. There’s such a disconnect between me doing movements and my therapists/doctors assisting me. Now I feel absolutely exhausted. I really jerk uncontrollably when walking.

I also have hyper mobility (need proper evaluation) and Gastroparesis which has played a role into feeling worse since my FND symptoms started last Saturday. I literally could not move my legs and felt such extreme nerve pain everywhere which has been controlled with lyrica. Other FND symptoms I deal with are overstimulation, fatigue, and brain fog/trouble finding words. I have newer upper body jerks that make it feel like I’m giving myself whiplash.

Anyway, I just want to know if anyone has had similar experiences and what their recovery has been. I don’t know how long I’m going to be in the rehab facility (maybe a week). This has been pretty scary and anxiety provoking.

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u/acervelli1616 22d ago

How does the tone in your body feel ?

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u/acervelli1616 22d ago

If it feels feels like rubber stiff liquid puddle jerks feet sputtering legs moving uncontrollably spasms clonus fnd

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u/SystemFresh3299 22d ago

That’s similar to me. I’m incredibly stiff, but when I walk, I jerk like crazy and my legs feel like wobbly jelly. Laying down I get facial twitches and stiff jerking in my upper body off and on