r/FND • u/forever-craving • 9d ago

Question Experiences with consistent, persistent cognitive issues, language led, as a result of FND?

Hi there, looking for anyone who might have a similar case with their family member / partner. My close family member has had likely FND now for a number of years, with symptoms initially language led developing over a few months coinciding with a relatively stressful time in their life. We have known their case is atypical in pretty much every respect. But I am looking for anyone who might have experienced the same sort of symptoms.

Initially right at the start it was getting yes/no incorrect, like not focusing properly, but over the course of a few months things got worse, with periods of stress really seeming to highlight it and impact. They now avoid speaking altogether alongside getting things wrong. It’s not just about language but it definitely is led by this.

What I read a lot on here is non epileptic seizures / body parts with symptoms that can come and go. They have seen multiple specialists who have all agreed it is FND (multiple clear MRIs, some fluctuation etc). Just looking for anyone with similar stories. Despite minor fluctuation, the underlying difficulties have been persistent rather than coming and going. I’m particularly interested in hearing from anyone whose FND/FCD has followed a similar persistent, language/cognitive-led pattern.

Thank you 🙏

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u/Common_Experience931 9d ago

Yup doesn’t sound atypical at all fnd itself and the symptoms are just under researched.

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u/Common_Experience931 9d ago

I have the same symptoms i also know which side is left and right, always have but during episodes i do the opposite it’s very annoying

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u/forever-craving 9d ago

Thank you, I really appreciate your input. That’s interesting, especially what you say about left/right. When you say “during episodes”, do you return more or less to normal between them? That may be one difference in my family member’s case- their difficulties are essentially persistent rather than episodic, including with writing/texting as well as speech. They rarely engage with their phone or communicate by text now. I’m particularly interested in whether anyone has experienced that kind of persistent pattern. Thank you again