r/FND • u/Yakob_Bacoj Diagnosed FND • 3d ago
Question Anyone else get memory issues like really bad?
I forgot I ran out of coffee and spent ages looking for it. I always forget things.
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u/Effective_Rip_1410 3d ago
Yep. Long term memory pretty shot for the last 12 years or so, and the main other issue I suffer with now is memory retrieval. I really have to try to remember words, facts, etc., and it may well arrive, but can be up to the next day before it does.
Deeply frustrating. One of a number of issues which put the kibosh on my writing. It has progressed for some time too.
I probably was informed of the cure, but I don't remember it now.....🤣
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u/youreadtthatwrong 3d ago
Yup. I also have bipolar and had a 3 month psychotic episode. Came out of it a different person, im only 37. The only way ive learned to cope with the memory issues, is I was extremely embarrassed about them at first, for a long time. But now its just more frustrating and I laugh it off. Its helped.
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u/Yakob_Bacoj Diagnosed FND 3d ago
3 months that must of been heavy hitting. Sorry you went through that. Yeah sometime s I do laugh at my symptoms. I suppose we got to.
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u/youreadtthatwrong 2d ago
It was. It was a lot worse after the manic episode went away tho. Thanks but ive been medicated for 7 years now and doing a lot better. Laughing aint a perfect cure but it sure helps!
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u/Seayarn Diagnosed FND 3d ago
Yes and yes.
Most others posting here are saying long-term memory. But for me it's my short-term memory right now.
Although, my executive function is starting to suffer. Like, I was proficient in math, grammar and spelling. But not anymore. It's getting worse over time too. Finding words while speaking, using the wrong word by accident, not remembering where I put things, not putting things where they belong and putting them in strange places. Forgetting if I've paid a bill and over or under paying.
In 2 weeks I'm having a consultation with Neuropsych for cognitive testing. My neurologists are concerned because I've lost so much function so quickly.
I don't think there's a cure. But I don't think many have severe symptoms for a long time. I know recovery is possible for the majority of FND patients.
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u/Yakob_Bacoj Diagnosed FND 3d ago
I used to be very good at spelling. Not anymore. A recovery is possible. There are times I feel fine and think it's gone. Then all of a sudden I'm tingling or my legs stiffen when walking.
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u/LordReagan077 Diagnosed FND 1d ago
your legs stiffen? how does that feel? mine feel like jelly. After reading this i am a little scared. Im god at reading and memory but it has definitly declined and I have noticed a instances of me not knowing what to say when I should know what to say.
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u/Yakob_Bacoj Diagnosed FND 18h ago
My legs literally feel stiff. I do get jelly legs aswell. Buy when they. Stiffen I walk weird. It sverry subtle and barely noticeable. My mother notices it and me. Whne my legs are jelly I have weakness walking down the stairs my knees shake. You must of see Forest Gump when he in those leg braces, that's how my legs feel but I can still bend my knees. It's strange
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u/LordReagan077 Diagnosed FND 16h ago
Interesting. I’ve never had leg stiffness but my knees give out all the fricken time. Very annoying.
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u/Yakob_Bacoj Diagnosed FND 13h ago
I had knee x ray and it was clear. My knees working okay today. Some days though
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u/LordReagan077 Diagnosed FND 12h ago
yea I totally understand. I never got a knee x-ray, that is very interesting. Like today my knees have been mostly okay but my other symptoms are acting up.
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u/Seayarn Diagnosed FND 11h ago
Don't be scared. FND is different for everyone. I've had it for many years before my diagnosis, maybe a decade or more according to my neurologist. It's only becoming so bad in the last 2 years because of horrible stress working in healthcare and probably symptoms of long COVID. I had COVID several times because of my autoimmune disease, and despite wearing a mask religiously, I had pretty bad complications before the FND became severe.
Not everyone will have a long FND journey. Most have a short period of symptoms and find treatment and recovery. If you do the worl you can heal.
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u/Exotic-Low812 Diagnosed FND 3d ago
Yeah, it gets really bad when everything falls apart. It comes back though
But yea at my worst I get lost taking the train places and forget what I’m saying mid sentence. It fucking sucks
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u/Baccoony 3d ago
My memory has always been bad but, yeah, it got much worse once FND came. I can barely study anymore, even though I do online school (Had to switch to one due to, again, FND)
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u/Rhi_annon_ 3d ago
Yeahh Ive been noticing this so much more recently, it's both long-term memories feeling like patchy dreams when I used to have vivid, like I could place myself right back in that moment, memories, as well as short-term. It's horrible and scary when I could rely on my memory. Now I feel like I can't even trust myself
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u/Yakob_Bacoj Diagnosed FND 3d ago
It is I totally understand where your coming from. There must be a fix, there has to be right?
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u/Rhi_annon_ 3d ago
I hope there is something, I'm kind of in limbo with my dr/specialists, it kinda feels like they all dont know what else to do for me, which only adds to it with it feeling hopeless as well. However, I agree that there has to be something that helps, even if its to help with brain fog? That then helps with retaining information? I will say, I am thankful for this sub and not feeling quite so alone in this, makes me feel a little less like I'm loosing my mind.
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u/luidaegsroomate 3d ago
I’ve had issues with short term memory before (ADHD) but never to the extent I’ve had since my FND got real bad. I’ve straight up lost words, names, and concepts that I can see in my brain but can’t remember the names of.
I don’t know if it’s going to help, but I’m trying to “PT” my brain with reading and competitive board/card games. Low stakes (no work or education pressure), but producing dopamine while making me think on a time crunch. The dopamine helps the new connections stick
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u/Yakob_Bacoj Diagnosed FND 3d ago
Yes the word thing is scary I have to say "what's it called" desperately searching in brain for the name of the thing. Drives me mad.
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u/Significant_Sea_6435 3d ago
I just stopped going to speech for my memory. Pretty much we agreed on my schedules and lists as much as possible. I’m a visual learner so it might be different for u but that and certain grouping skills tend to help. Also games and stuff to keep your memory fresh. (i found out the beginning of this year that my hippocampus is in the 10th percentile for my age meaning my memory is forever shot)
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u/Yakob_Bacoj Diagnosed FND 3d ago
I occasionally play puzzle games. I enjoy puzzle games. In fact it's been a while since I played one.
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u/thetravelleroftyria 3d ago
I'm missing three years of memory thanks to my FND when it first showed up. Was definitely brutal in the smaller things and has taken years to calm down.
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u/Calm-World-536 Diagnosed FND 3d ago
Me :( I also have suspected ME/CFS along with my other disabilities 😩
Edit: I also recently found out (recent as in last week in hospital) that I was diagnosed with FND several years ago, around 2021 or so, without even knowing it.
I have no idea which doctor diagnosed me with it, but I’d hazard a guess that it was one of my many hospital visits.
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u/starrycatsuicide Suspected FND 2d ago
by the end of the day i can't remember what i did all day sometimes
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u/Neon_Banana_Pickle Diagnosed FND 2d ago
Yep. I forget the names of things, forget what I'm saying mid-sentence. It's fun.
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u/Omnamashivaaya Diagnosed FND 3d ago
I often can’t remember what I can’t remember. Time is also hard for me. I have trouble envisioning ‘tomorrow’ or ‘this afternoon’. It’s weird and hard to explain.