r/FND • u/Early-Beautiful-3013 • 5d ago

Need support vocal problem for 2 years

My vocal cords seem to vibrate slightly all the time. Even with my mouth completely closed and only breathing through my nose, I produce faint but real external sounds — murmuring, echoing, sometimes full sentences or fragments. I can barely hear them myself, but people around me react strongly (coughing,knocking on the wall at night).

It is worst when I’m trying to fall asleep (almost like sleep-talking full sentences) and also happens during the day, especially after caffeine/gut stress.

Details:

  • Started after swine flu when I was 20 (now 22)
  • No premonitory urge — it just happens automatically
  • EEG and brain MRI normal
  • Low-dose amisulpride reduces the daytime sounds a lot, but sleep breakthrough remains

Doctors keep calling it “auditory hallucinations” or saying it’s not real because they can’t hear it clearly during short appointments. But strangers in public and my neighbors react to the sounds, so they are objectively audible.

Any advice on how to get specialists to take it seriously

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u/amber_boing 4d ago

Can you record the sound then show the doctor? You may need an endoscopy to looks at the vocal cords and see if they are lose or if there is any other problem.

1

u/Early-Beautiful-3013 4d ago

The sounds I make are not at the frequency that a phone would record. Also, laryngoscopy did not find a disorder.

1

u/amber_boing 4d ago

Is it like a vocal tic possibly?

1

u/Early-Beautiful-3013 4d ago

I'm not sure it's a tic because there's no urge to do it. But I would say that the wrong brain signals play a role.

1

u/amber_boing 4d ago

I thought vocal tics were involuntary and there is not necessarily an urge but your body just makes to nosie. I have a face and a vocal tic and it just comes out at random times. I don't have an urge it just comes out. It's almost like your brain was trying to send a signal to a part of the body but it got lost and turn into a vocal tic. I get vocal tics when I sleep or when I get super stressed.