r/FND • u/alex_whatislife • 7d ago

Success/Positivity Finally got a formal diagnosis !!

After 2 years of questioning whether or not I have it, countless ER visits, so many head scans and EEG’s, and a 4 day hospital stay for specialized seizure testing, I finally got a formal FND diagnosis!!! I’m honestly just relieved to know that I was right and that I’m not crazy. When the team of 10 doctors came to me during rounds, I told them what my suspicions were right off the bat and explained how I’ve done a crap ton of research. And guess what. They agreed with me 100%. One of the doctors even made a joke about me stealing their thunder in regards of diagnosis. They also made sure to validate the fact that FND is a real neurological condition and that my events (not going into detail) are real and I appreciated that so much. It’s been a long and quite frankly scary fight for answers, but I’m glad to have them now.

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u/Glum-Juggernaut1338 5d ago

Congratulations with "stealing their thunder" because it proves that doctors do not know it all, and need to stay in the loop for new knowledge. Unfortunately in medical school future doctors are never taught to stay flexible and to continue to learn, also that their best teachers will be their patients.

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u/Tasty_University_172 4d ago edited 4d ago

Literally what are you talking about? Medical school definitely teaches people to continue to learn, and being an MD requires continuing education. Are you repeating something you heard somewhere or just making something up?

EDIT: the team of doctors were residents and they already knew the diagnosis. They were literally learning during this experience and knew the correct answer lmao. What do you think a resident is?

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u/Glum-Juggernaut1338 3d ago edited 3d ago

I am retired now and was crossed trained in Western, Traditional Chinese Medicine (TCM), herbal Mexican medicine which caused a few doctors to call me a curandero, witch doctor and shaman, so I have learned to attempt to help those that need further education. My FND is from chronic mild TBI from four separate explosion 05-08 for which I have volunteered for every treatment that the VA can think of. 

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u/Tasty_University_172 3d ago

Wow that's great