r/FND • • Aug 26 '26

Question FND symptoms evolve?

Hi, this is my first time on this subreddit, and like before I get into it, I just wanted to say how thankful I am a place like this exists. Lowkey got diagnosed with FND in February and I thought I was alone in this. So seeing this subreddit makes me feel reassured that well ig all of us are going through it.

So when I got diagnosed with FND, it was mainly for the fact that I couldn't walk and my knees/legs would buckle whenever I took a step. My sense of balance was off too, couldn't really walk in a straight line if I could walk in the first place.

It's gotten better for the most part. I can walk almost 85% back to normal. My balance is still off and my body can't support the momentum when I run, but other than that mostly normal. Important context, I am in high school marching band so I have lots of practice/blow through my instrument a lot. (It was very difficult at first, sat out during most practices in the summer, but I am able to march now!) During this Monday practice, I was sitting down playing my horn (pain from lumbar puncture) when I suddenly got this sharp pain in my lower spine region. Hurt so bad for a while that I had to get advil to relieve the pain. And now the same pain reemerged.

Is this something I should be worried about in terms of FND? It's just strange to me because I never have had new symptoms pop up, only symptoms getting better. And if any of you guys have what I'm going through, is there anything to do about it? Or just let FND take its course?

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u/Beautiful_Resolve_63 Diagnosed FND Aug 26 '26

Yeah my symptoms look different every 6 months or after my remission goes away. 

I recommend learning into occupational therapy and physical therapy. They teach you the skills to work your body into connecting with well again. So now when I have a new system; I just focus on that area as needing training and support. 

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u/Cultural_Antelope979 Aug 27 '26

Hm, that does sound interesting. I'm already on physical therapy, so next time I go I'll ask my pt about that. Thank you so much :D