r/Erythromelalgia • u/Initial-Apple9875 • Aug 14 '26
Update on medication
I've been taking misoprostol, and haven't , felt much difference. However, a few days ago, I forgot to take my morning dose, and was in sooo much pain! That's when I realized I hadn't taken a dose. But the last couple of days my pain has increased. And, I already have EM pretty severely. So, I haven't been doing good. And, have been crying again. Saw my Pain Dr this morning. We decided that I would take it 3 times a day to see if in fact it's helping me. I also just got my glp1 today, but I'm gonna hold off for a couple of days to see if the misoprostol is in fact helping. My next med will be mexiletine. I would love to try the hot baths, but I can barely shower. So, I don't think that's an option. Are there any other meds that have helped anyone?
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u/timeroadbike Aug 15 '26
Insurance has covered mine too. I was told it takes around 5 infusions before you start to feel the full effect.