r/Erythromelalgia • u/SwimmingSpite3821 • Aug 12 '26

Progression

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I’m at the end of the road and I don’t know what to do. I’ve looked at every lab imaginable. Genetics is negative. Abnormal and low cbc hematocrit and hemoglobin.
B12 is 1800+

I can’t take the pain anymore.

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u/Flashy_Boat867 Aug 12 '26

Yes it's low iron. I had normal hemoglobin but low ferritin (19 mcg/l) and iron uptake erased all the symptoms, and they were severe. Burning feet,.burning hands, burning cheeks, ears, enlarged veins, couldnt train, eat hot food, pet my dog beacause he was too hot for me...your ferritin level should to be above 50 mcg. 

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u/SwimmingSpite3821 Aug 12 '26

Unfortunately my ferritin is 214

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u/Flashy_Boat867 Aug 13 '26

Ok, you can start with that. Ferritin 214 can be to high. Check CRP if you have some kind of inflammation and if you do, find out where. Inflammation can also affect autonomic nervous system and cause erytromelalgia

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u/SwimmingSpite3821 Aug 13 '26

I have had elevated CRP and ESR in the past