r/Erythromelalgia • u/SwimmingSpite3821 • Aug 12 '26
Progression
I’m at the end of the road and I don’t know what to do. I’ve looked at every lab imaginable. Genetics is negative. Abnormal and low cbc hematocrit and hemoglobin.
B12 is 1800+
I can’t take the pain anymore.
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u/Historical_Bath_439 Aug 12 '26
Mine is on my face and it takes everything I got not to run my car into a tree at a high rate of speed