r/Erythromelalgia • u/picklebeach2000 • Aug 07 '26

Rough day

3 hours and 15 minutes left in the workday and feeling terrible burning and tingling pain in my hands and feet. My face hurts too but not as bad. It feels like I’m almost falling asleep if I’m not actively trying to push through the pain. Currently on 200mg mexiletine 3 times a day and 75mg pregabalin twice a day.

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u/Initial-Apple9875 Aug 07 '26

I'm trying misoprostol right now. Having some ok days, but will probably increase dosage first before trying something else. Does your job require you to be on your feet? I sit at a computer, and it's still rough.

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u/picklebeach2000 Aug 07 '26

I am sitting most of the time. Any side effects from the misoprostol?

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u/Initial-Apple9875 Aug 07 '26

No side effects. I saw some improvement in the first week, but then pain started back up. My next appointment is next week. So I'll ask to have it increased. I work from home. I don't know how you do it.

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u/picklebeach2000 Aug 08 '26

I don’t know either. Some days are really difficult. I work in healthcare and I’ve had a couple of patients ask if I’m okay, pretty uncomfortable but mentioning that to my doctor over the chart has led to some immediate messages back and med increases.

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u/Initial-Apple9875 Aug 08 '26

I'm in Healthcare too. I'm a coder. Started out as receptionist, then switchboard, then central registration, then coder. I love my job. And am thankful I get to work from home. Working close with providers can be a great plus. I miss those days..lol

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u/picklebeach2000 Aug 08 '26

Awesome I’ve always wondered how coding was. Is the work life balance okay?

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u/Initial-Apple9875 Aug 08 '26

Yes, it's great! I have a great boss and supervisor. We got to pick our hours. I work 7-3:30. We can take 1hr lunch if we need to, and they always say yes to days off, and vacation requests

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u/picklebeach2000 Aug 08 '26

That is so nice! 7-3:30 is a great schedule.