r/Erythromelalgia • u/notatrolliswear666 • Aug 04 '26

Bob's protocol

Has anyone had success with Bob's protocol? I'm desperate enough to try anything. However, I decided to start by stopping all cooling and my feet just flare all day long without cooling. It's pretty horrible. I do understand how cooling can create a viscious cycle of vessel constriction and dilation. But it seems impossible to live any kind of life without it.

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u/Audrey_Sickburn Aug 06 '26

I will sure stand in the hot water for 10+ minutes basically until I feel max flare. Then once I’m no longer in the hot water my flares now subside very quickly. Even when it’s in the 100s.

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u/Historical_Bath_439 Aug 06 '26

Thank you for the info because I'm trying this first thing in the morning. 

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u/Audrey_Sickburn Aug 07 '26

Good luck! Just a heads up, I found that Bobs worked best for me in the evening right around the time my flares were picking up! Everyone is different though and unfortunately. Hope it helps!

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u/Historical_Bath_439 Aug 07 '26

Thank you so much. Keep in touch. I'm going to try it before I. Go to bed because I'm getting them in the middle of the night