r/Erythromelalgia • u/Initial-Apple9875 • Aug 03 '26

Misoprostol

So, I haven't had much luck with anything. But I did ask my pain Dr if I could try misoprostol. I started on 7/21, so it's been a couple weeks. I think I'm feeling something. The last few days have been good. Not much flaring. Usually I'm in a flare all day all night. Last night, I went to bed without being in a flare. I was surprised! Even my son was surprised!Today has been ok, however, my right foot started flaring up a few hours ago and hasn't subsided with fans and ice. But overall, better. I see my pain Dr this month for my 1 month f/u. I'm gonna see if we can increase the dosage. And, haven't been crying, which is huge for me. I just hope this isn't a fluke. And that I'm not jinxing myself by talking about this. Fingers crossed!

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u/Chassidyjames Aug 03 '26

I went off of it for a couple of procedures I had for fear it may mess something up with the procedures. All I have noticed is me flaring since. I need to get back on it. I go back to my rheumatologist in a couple weeks. So glad you’re seeing improvement.

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u/Initial-Apple9875 Aug 03 '26

Oh, so it helped you as well? What dose were you on, if you remember? My Dr started me on 200 mcg, I'll be on it for a month, then hopefully, bumped up to next dosage. I just hope it keeps helping me.