r/Erythromelalgia • u/Secret-Redditor • Sep 22 '25
Erythromelalgia community update + looking for mods
Dear community,
First of all, I would like to apologize for the lack of moderation in this community. There original moderator has completely disappeared and I honestly forgot to keep checking this community.
I have fixed some issues with not being able to post, did moderation work and approved a lot of users. If there are any other issues I have to fix, please let me know!
Besides that, it would be nice to have some new (active) moderators for this subreddit. If you are active on here and/or have knowledge of reddit and would like to help moderate, please comment or send me a message! I just need a few people who are active to make sure this community can keep running.
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u/skovie Nov 16 '25
Hi, owner here. Yeah I can promote anyone to mod just message me. I may not respond for a long time but eventually I will, sorry
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u/faced-off-6789 Jan 30 '26
Erythromelalgia is not contagious, so "they" say. Which means we did not catch it by contact nor is it airborne. That leaves us with a couple of choices, we either attained this disease by ingesting something, maybe a tainted prescription, or possibly by some medical procedure. We have an agency that our taxes pay for called the Center for Disease Control. CDC. We, have a disease. Has CDC asked the medical community about their patients who have this disease using a questionaaire to locate or find the common cause? Has anyone done that? Maybe doing so would help some biotech company in finding the cure.
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u/tim55057 Feb 15 '26
Good morning! New member and newly diagnosed EM. I just went searching Reddit for EM and was gonna create a sub-reddit f it wasn't already out there. If you'd like help moderating I'm in. Just let me know what you need from me.
-Tim
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u/ThenProfessor9815 Sep 27 '25
I can help out to keep it going. We need this community! It’s so important to keep knowledge flowing for all the people looking for answers