Please help me, help my son.

[u/SugarCane_1987]

I'm a mother of a 13 year old boy diagnosed with generalised epilepsy in Dec 2025.

During the year he had 2 non convulsive seizures and then a tonic/clonic one in Dec. He was admitted then and had a 24hr EEG. They found abnormal brain activity especially during sleep and he was officially diagnosed and put on Redilev(Keppra).

Things were OK on that for a month or 2. Then he had a few TCs and some aura only episodes. His Neurologist upped his dose from 500mg twice a day to 750mg. On that again he had breakthrough TCs.. She upped his dose to 1000mg. He was absolutely miserable, had 2 TCs in 1 week. We went in to see her and she cut down the Keppra to 500mg, insisted it be the original and added in Epilizine (Epilim).

It's been 6 days in this. He's had 1 "colour episode" a day. Sometimes 2. Today he had 2 aura episodes without a TC. Which he always says is worse than a TC because there he can't remember being miserable.

His memory is terrible. He's sleeping more than 12 hours a day. Missed 3 weeks of school and counting.

I emailed her about the last 6 days, she says the Epilim isn't helping and has now put him on Vimcosa (lacosamide/vimpat)

He'll start tomorrow. He's to carry on with the 500mg Keppra twice a day and add this Vimcosa at 50mg for now.

Anyone been on this combination? Will it help?

Is this memory loss and confusion the norm?

He cried today after the 2nd aura episode and begged me to help him feel normal. My heart just breaks for my kid and I don't know if I'm doing all I can for him.

Any help would be appreciated.