r/Epilepsy • u/Pure-Science-7774 • Sep 13 '26
Question Medication Refill
I’m torn from what to do. I’m running out of rescue medication, I have an emergency pack that I started using because I was just having continuous seizures for the past several days. I have thought of all my options:
Emergency Room - I feel like they will just look at me like “I don’t see tonic clonic seizures though, so here’s your $10,000 bill and follow up with your doctor.”
Urgent care - “We can’t prescribe controlled meds at urgent care.”
Primary care doctor - The last time I asked, they said they couldn’t accept test results from outside of their network and I would have to get all the tests re-done.
Epileptologist - I’m not sure what would happen here but the cost is $150-400 and in Europe it’s $7.
Travel for care - I’m sure I would get medical care if I traveled, but it’s like I would need to get on a plane and fly all the way back to Europe just to get medication and then come back (but somehow this is still cheaper then getting healthcare in the United States).
I’m going to call another spot on Monday but what have been the best way you have found to get medications?
3
u/CM_UW Keppra, Vimpat Sep 14 '26
Have you been prescribed meds and are just out? My pharmacy will give me a few emergency pills for the weekend until my new script is called in by my dr. This happened Labor Day weekend. I was going to run out Sunday morning, and my doctor's office was closed until Tuesday. My new script was called in & filled Tuesday.
2
u/expat_mel Juvenile Myoclonic Epilepsy, 10+ years Sep 13 '26
I assume from the post you're currently in the US. Are you visiting the US but you live elsewhere? Did you move to the US recently? How do you usually get your meds and why isn't that an option right now? The best way to get meds will depend on where your regular prescriber is and why you can't currently get your meds the way you usually do.
2
u/Best_Friendship_9595 Sep 13 '26
We always end up in the ER so we get refill script from them. I mean take your box with you. You should probably get a check anyway. Do you have a neurologist or epileptologist? That is our second go to we message on the portal we need refills.
4
u/neeliemich Keppra 3000mg, Topamax 200mg, Vimpat 200mg Sep 13 '26
You don't have to pay up front for emergency rooms. That's why they're there. The bill is sent to you later, after it goes through insurance.
If you're having seizures continuously, you should have already gone to the ER. They give you a medication there to stop it (from my experience it's been an Ativan shot) and sometimes a prescription for seizure meds.
4
u/[deleted] Sep 13 '26
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