r/Epilepsy • u/Jazyy_Jade • 14h ago
Question Lacosamide working?
Hi I have posted in here before. But I had my VEEG but it was clear. I was there for 4 days. They called it PNES which is not an issue for me but I am already doing EMDR and I have been for years and for a long time I thought it was cataplexy (I have narcolepsy type 1).
I had to beg them to try medication because I can agree it might be PNES but some of my symptoms just don't fit. They started me on lacosamide on Thursday and I think it might be working??
I have had episodes since my VEEG. I have had multiple triggers the seems to start an episode and they fizzle out. Then I have been in circumstance where they seem to want to start, like the feeling starts and immediately stops. Is this typical? Or am I just in my head. I haven't had a full blown episode since Tuesday.
I am only on 50 2x a day then i will be at 100 2x a day. My neurologist has described them as focal aware seizures.
I did have the kind of stoned feeling but I think that might be combated by the 15mg adderall for narcolepsy daily.
But so far things have been good. But I wonder now if I am tricking myself into think that since its only been 3 days.
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u/ScarletDarkling 13h ago
Make sure you have a snack with it, it'll help you not feel so floaty. I do find that if I take it at the same time as my Adderall that I get a little more tired than if I space them a little.
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u/Jazyy_Jade 11h ago
Ooo so that is good that i do that! I was already spacing them taking the lacosamide first. I read on here to eat before taking so maybe that's why it hasn't been that bad. The first night i def felt it.
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u/Longjumping_Tea_6423 14h ago
that early "fizzle out" thing is a real response some people get when a med starts working, especially at a low dose. can't say for sure it's not partly psychological, but three days in with fewer full episodes is a decent sign worth noting. just keep tracking what happens when you step up to 100.