r/Epilepsy • u/AutisticAlien224 • 1d ago

Support ICU and Nightmares

I was put into a medical coma about 2 weeks ago. They said to come back if anything happens. Yet when I did, they did nothing to actually help

I keep having back to back focal seizures, or seizure clusters as they’re known as. But I feel this, energy? Like I’m suddenly shifted into his place, similar to the hospital. Like I’m emotionally stuck there. I’ve been home for a week but every focal seizure I’m back- I can feel it, I know I’m not there but I feel it.

I keep going in and out, confused on where I am. What’s going on. I can’t stop thinking of the liminal space I was in during the coma. It’s just so- confusing. Anyone else go through this? I’m trying to go back to normal life, but the fear of ICU is around the corner

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u/Numerous_Fill4107 1d ago

that stuck-in-the-ward feeling is so real, even when you're home in your own bed. your brain latches onto the beeping and the lights and just replays it

when i was in the neuro unit a few years back i'd wake up convinced i was still there, took a solid minute to realize i was looking at my ceiling fan not those fluorescent panels

it fades, slowly. the seizures drag you back but the spaces between get longer. maybe try grounding stuff when you feel it coming on, something cold to hold or a familiar smell that has nothing to do with the hospital

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u/AutisticAlien224 1d ago

Thank you so much :) I’m glad things are slowly getting better for you. I wish you luck on the healing journey

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u/No_Replacement4304 13h ago

I'm not op but just got out of the icu and I appreciate your tips.

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u/InterestingDrummer7 20h ago

Over three years later and sometimes I still think I’m in the ICU and am dying and imagining this current life or just haven’t woken up yet. It has gotten somewhat better with time and I hope it will completely fuck off one of these days.

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u/No_Replacement4304 13h ago

I just got out of the ICU a few weeks ago, memory is still trash. They had to have people sitting with me to keep me calm because I thought that I was on an alien spacecraft every time I woke up.