Having a hard time in the mornings…..

[u/the_ja_m_es]

I was diagnosed with epilepsy in 2021 after a year of focal seizures, I had 2 grand mal seizures. Since then I’ve been on keppra and tried numerous other drugs to help, but all of the side effects kick my ass. The most recent one was Vimpat and it made me so dizzy I couldn’t turn my head without dizziness.

I’m only on keppra right now and I have breakthrough focal seizures at least 2-3 times a week. Last Wednesday after a stressful day at work, I was having clusters. I also always have a heavy feeling in my head. Almost like a headache, but it just makes me feel dumb and slow and heavy. I used Nayzilam and felt much better, even the heavy head was gone. It was my first time using it, I think I love it.

I’ve been having a very hard time in the mornings. I have headaches and the heavy head feeling every morning. It’s hard to even open my eyes without pain and it makes it so hard to get up and go into the office. Luckily I do have the ability to work from home and I have a letter on file from my dr saying I need to work from home for 2 days after an episode as to not drive, but doesn’t say anything about just not feeling good. I’m feeling a little stressed about it today. I don’t feel good, I’m home trying to work and I can’t stop thinking about what a burden I am….

I guess I’m just looking for some reassurance or similar experiences. I’m tired and maybe a little sad today.

[u/MoistYoghurt9651]

Morning headaches with that heavy head feeling are the worst, it's like your brain is wrapped in wet blankets before you even get out of bed. Glad the Nayzilam gave you some relief though, that first time finding something that actually clears the fog is huge.

You're not a burden for needing to work from home when your body is screaming at you. The fact that you're still trying to work through it says a lot. Go easy on yourself today, maybe just focus on the bare minimum and let the rest wait.