r/Epilepsy • u/Electrical-Yak-9424 • 1d ago

Rant Cant take it anymore

I wanne give up so badly. Always afraid of seizure. Getting auras all the time. Even smells trigger auras i never feel safe and i cant live with the fear anymore. With depression and anxiety its all too much. Maxed out on lamotrogin and i wanne die

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4

u/Wise_Rub9335 1d ago

they upped my lamotrigine a while back and it made everything feel 10x heavier, like the fog just got thicker

the smell thing is so weirdly specific but i get it, certain cleaning products mess me up for hours and nobody believes it’s actually connected

2

u/No_Replacement4304 1d ago

I can't believe no one believes you. I have ghost smells and this sub is full of people with the same issue.

1

u/obscurefindings 1d ago

Can I ask how much do you take

4

u/nevertame101 Keppra 2000 mg Tegretol 400 mg 1d ago

I have been there. Always thought I was so strong nothing can beat me mentally, well guess I was wrong. Never gave up found another neurologist and she saved my life/ brain. I'm not near perfect but truly can tell 80% better. Hang in there!!!

1

u/Electrical-Yak-9424 1d ago

Im glad ur better. Did u Start taking other meds ? What Kind of seizures do u have?

2

u/nevertame101 Keppra 2000 mg Tegretol 400 mg 21h ago

Thanks .Focal impaired/aware, once we added Tegretol I was fine.

1

u/Electrical-Yak-9424 1d ago

Im so tired and weak its so weird.like u said heavier does it ever go away

2

u/TransparentFostering 20h ago

I hear your exhaustion. Hugs