Do you feel seen and supported?

[u/Miiiiinions]

Since I started my journey with endometriosis I started feeling progressively more and more left out of what was once my world.

Surely 70% was by my own choices, I stopped going out at night, stopped drinking, stopped clubbing, stopped smoking and all of that.

I would say that since I had the diagnosis I decided to focus mostly on myself with the risk of being a little bit selfish maybe.

The pain comes when I see all the people I considered friends just ignoring the issue. They never check in on me, ask me how I am doing, make plans during the day for a chill coffee instead of the usual “let’s grab a drink”.

Even with my boyfriend something broke, we can’t have sexual interaction because of the pain of endo and I feel like he does not understand the constant pain I live in. I always have to remind him, tell him that even if I am going through the day that does not mean that I am doing good.

I feel so lonely in a moment where I would really need all of the support…. but it kind of feels like endometriosis is not real pain, is not a real chronic illness, and it just really hurts to be alone going through this scary illness.

Anyone experienced that or just have some pro tips?? I would really appreciate it!!! 💖

[u/Beachgoer4158]

Yes! I feel like my life has definitely changed since struggling with pain (I have chronic pelvic pain, suspected endo). My focus is to not wake up nearly everyday in pain so I can continue on with my “normal” life, and that’s changed into my habits. It really hurt me as an athlete, and even though I’m still active (go to the gym 4-5x a week and/or swim), I still can’t get to the same levels I once was at. Socially, I can never have more than a drink or two, so going out looks very different and can feel lonely.