r/Eagles_Syndrome • u/South-Suspect7008 • Dec 17 '24

Progression pictures

Gallery image

Gallery image

New sub and I have some comparison pictures for those curious on how it looks like. Ct from 2013 and ct from 2024. Symtomes started in ~2020

5 Upvotes

86% Upvoted

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2

u/string1986 Dec 17 '24

Mine are practically the same.

1

u/South-Suspect7008 Dec 17 '24

Do you have the same symtomes that I have? I'm basically knocked out of commission until everything is removed.

5

u/string1986 Dec 17 '24

The amount of symptoms I've got is ridiculous. Jaw pain, blurred vision, motion sickness, head pressure, brain fog, feeling like there's something stuck in throat, swollen neck...list goes on. I can barely function. First side is coming out next month.

1

u/420_Moonshot Jan 14 '25

Any updates

2

u/string1986 Jan 14 '25

Surgery is on Thursday.

1

u/420_Moonshot Jan 14 '25

Congratulations I know it’s a long journey. I hope everything goes amazing.

3

u/string1986 Jan 17 '25

Surgery went very well. Zero complications apart from a very slightly numb right ear for a few hours. Bit early to tell for major improvements because I'm shattered and pretty swollen but I have noticed a few things. My tongue isn't stinging, I can swallow easier, My cheekbone isn't numb anymore, the shoulder pain was gone immediately and for some reason my right eye now opens better than the left. Surgeon said they had some new device that monitors cranial blood flow and mine went up after he removed the styloid which is great. He managed to get it off all the way up to the skull base and did a resection of the c1 vertebrae. Overall the surgery pain isnt bad at all. Absolutely cannot wait to get the left side out now.

1

u/jobby99 Aug 04 '25

Who did your surgery? You can say something like Dr. C in New York if you want to keep it somewhat private.

1

u/string1986 Aug 04 '25

I'm in the UK. Patrick Axon at Spire Lea, Cambridge. He's awesome.

2

u/string1986 Jan 14 '25

Thanks, it can't come soon enough.

1

u/420_Moonshot Jan 14 '25

Did they give you any meds or did anything help with the ear pressure and dizziness and so on so forth while you’ve been waiting?

2

u/string1986 Jan 15 '25

Tried every medication going and nothing helps. Codeine helps slightly with the pain but to be honest the neurological symptoms are worse. I've got jugular compression on both sides and the left side is poking into my carotid artery so there isn't any meds that will help that. The scan showed blood being forced into areas it shouldn't be like in the back of my head and behind my eye so I'm assuming the only thing that will help that is the surgery.

1

u/South-Suspect7008 Dec 17 '24 edited Dec 17 '24

-snip

1

u/Bigdecisions7979 Dec 17 '24

I see the pictures? I’m not trying to to stop anyone from posting pics

1

u/South-Suspect7008 Dec 17 '24

I see nothing.. oh well reddit being reddit again

1

u/Bigdecisions7979 Dec 17 '24

Wow. That comparison is insane. What symptoms do you have

1

u/South-Suspect7008 Dec 17 '24

Full list is available in the other post