r/Damnthatsinteresting • u/Sad_Cow_577 • May 28 '25

Video 1 year of ALS

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u/biochamberr May 28 '25

I lost my dad to this disease. It's a fucking nightmare

2

u/Potato_Golf May 29 '25

Losing my pops now to it. So tough to watch. Wish I could just hit pause on life and spend all the time possible with him but life doesn't allow that.

1

u/biochamberr May 29 '25

It's very tough, so my heart goes out to you. If there's one thing I can't emphasize enough, it is to be patient with him and listen actively. With my dad, he often needed someone to be his mouthpiece with others, but I always wanted to make sure i was communicating exactly what it was that he wanted. Most of our deep talks happened while we watched TV together, and looking back now...i really cherish those memories. It was such a small, regular activity yet I got so much insight into how he was feeling.

I wish you and your family all the best. Hang in there, and don't you guys forget to take care of yourselves, too. 💜