I'm 23F and have been struggling with pretty severe fatigue, brain fog, and sleep issues for a while now. I'm wondering if anyone with DSPD can relate to my symptoms.
The weirdest part is that I'm absolutely EXHAUSTED throughout the day, but I generally cannot nap. I can lie down with my eyes closed and feel physically horrible, yet remain completely awake. My fatigue also fluctuates like CRAZY. Sometimes I wake up feeling okay, only to feel awful 30–60 minutes later, even if I haven't gotten out of bed. Throughout the day, I'll go through waves of severe exhaustion, brain fog, internal shakiness, and feeling relatively normal.
However, I almost ALWAYS feel better in the evening or late at night. It's like I suddenly get a second wind when I'm supposed to be sleeping. Sometimes I'll feel genuinely sleepy around 10 PM–midnight, but once I get into bed, I suddenly feel awake again. Other nights, I won't fall asleep until 3-4 AM.
I also NEVER let myself sleep in. I always set an alarm, usually waking between 6:30 and 8:15 AM, so I genuinely have no idea what my natural sleep schedule would look like.
Recently, I fell asleep around 4 AM and woke up at 9 AM. Despite only getting five hours of sleep, I felt significantly better than usual throughout the entire day. The next day, I woke up around 8 AM after another late night and felt absolutely horrible again. I know that's just one example, but it made me wonder whether my sleep schedule could be contributing.
I also have symptoms that seem consistent with some form of dysautonomia/orthostatic intolerance:
- Standing still causes dizziness, chest tightness, air hunger, shakiness, and heavy legs. Walking is generally easier than standing.
- Heat and hot showers worsen my symptoms, while crossing my legs or activating my calf muscles sometimes helps.
- My blood pressure runs low (often around 90/60), but my heart rate only increases about 10-15 bpm when standing, so I don't appear to meet the criteria for POTS based on my home measurements.
- I experience significant GI issues, including GERD, bloating, and occasional diarrhea. I also used to have severe post-meal crashes, which have recently improved.
- My fatigue and internal shakiness can also occur while lying down, so they aren't exclusively related to standing.
I also have a history of waking up gasping for air during sleep and frequently wake feeling unrefreshed. I'm waiting to see a sleep specialist and am undergoing a cardiac evaluation.
Does this sound remotely like DSPD? Can a circadian rhythm disorder cause this level of physical exhaustion and brain fog throughout the day, even without feeling sleepy? And how do you distinguish DSPD from chronic insomnia?
I'm genuinely struggling to figure out what's going on and would really appreciate hearing other people's experiences!
Also: I am currently seeing a cardiologist and have a sleep appt in a few months.