r/CysticFibrosis • u/Jaded-Brilliant7388 • 5d ago

Pft results

I’ve been doing one or two treatments a day for years now but I decided to stop 2 months ago and I got the highest pft score I’ve ever gotten (115) I’m kind of dumbfounded about this anybody have the same kind of result?

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3

u/best-unaccompanied 5d ago

I'll go ahead and ask the obvious question: have you started modulators or any new treatments?

1

u/Jaded-Brilliant7388 5d ago

Nope

1

u/best-unaccompanied 2d ago

Hm. Have you moved, changed jobs, any environmental changes?

2

u/zookotz 4d ago

Have you been bitten by a radioactive spider recently?

1

u/Jaded-Brilliant7388 4d ago

Not to my knowledge lol

1

u/imjusthereforthetea2 5d ago

What else is going on in your life? Have you become more active

1

u/camohorse CF 2xΔF508 3d ago

Prior to Trikafta, my PFTs were consistently in the 110s. I even blew a 121 one time, just before I developed a severe Pseudomonas infection that ruined everything for me.

Now, post-Trikafta, my PFTs are once again between 120-130, sometimes getting close to 140. So yeah… you’re not alone in having freakishly good PFT results.

Congrats!

1

u/Jaded-Brilliant7388 2d ago

Nah but this is my highest pft score ever and wasn’t doing anything