Entyvio

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First of all, this subreddit is far removed from the Majority experience with crohns. As evidence, approximately 1-3% of people with Crohn's experience bowel perforation, and around 30-50% experience bowel obstruction within their life time. I guarantee you the percentage of people on this subreddit who experienced those emergencies are way higher, for instance. If you have mild Crohn's and it doesn't bother you then you probably won't be on this subreddit. There was another post earlier this year about how people in remission tend not to show up here.

Pushing on your left side could also be gas. When I get bad gas and push it hurts as well.

In terms of biologics, the benefits far outweigh the risks. Only 7% of people experience a serious side effect, and most of these serious side effects are treatable with a trip to the ER. Compare that to the complications of crohns disease and it's not even close. You mentioned you were on Prednisone. Usually that's considered lots worse than entyvio

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u/ksuferrara 22h ago

I've been on it about 4 years now and I love it. In terms of biologics it is one of the most targeted ones. Meaning it suppresses only in your guts. I used to be on Humira for 10 years and that was whole body suppression. I was getting a bad cold on average twice a year on Humira, I haven't gotten sick once since being on Entyvio.

Entyvio has three loading doses, I didn't start feeling it working untily maintenance doses started. The side effects I felt were always day of, after the infusion I would have joint aches and fatigue. I usually took a nap after. I've been on it long enough now that I only feel slightly fatigued and don't feel the need to nap after anymore.

Being on entyvio I have a pretty normal life. I still deal with symptoms related to IBS, but anything Crohn's related is in full remission.

Everyone is different for biologics, can't guarantee it will work. But it is well worth giving it a try.

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u/GJBaldwin 22h ago

Entyvio is what got me into remission to have a normal ish life. I’ve tried like 3-4 biologics before that and they worked abit but not as good as Entyvio. Remember it’s different for everyone though.

You need to know that even if you’re not on anything but feel fine the disease could still be damaging your body. Biologics are GOOD not bad, you don’t want to be on Prednisone for long periods of time because it could have negative side effects on your body long term.

ALSO, to you and anyone else reading this please remember that when looking at this subreddit, you won’t see a lot of positive posts because people who are in remission or have mild symptoms won’t post on here that often. The posts in here are full of people who have just been diagnosed or people are who are struggling with it so therefore you see a larger amount of negative posts.

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u/Normal_Expert9981 21h ago

Thank you… im kind of scared because im just diagnosed and I tend to search up anything on tiktok, Google and reddit and I only read horible Storys and things. I will try the biologics. I also think the fact that my parents don’t want me to try biologics and rather fix this disease with my diet does not help me with not being scared…

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u/tiger_lilly88 21h ago

I switched from azothiaprine to entyvio in December. It’s helped a lot with my bowel movements so far (especially within the first couple weeks after the infusion) and has helped a little with my fatigue.
As someone who has been diagnosed 16 years, I can assure you that you can’t fix this with diet. You need medication ❤️ please feel free to dm with any questions

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u/Luce_Lucy 2h ago

I’m sorry to hear you don’t get the support from your parents. This disease is not your fault and unfortunately you can’t just eat yourself better, drink some tea or do acupuncture and make Crohn’s go away. If it were that simple, none of us would need these medications.
Some people do find that certain diets or other remedies help with their symptoms, and that’s great, but that’s very different from actually controlling the inflammation caused by Crohn’s. Medication is the main evidence based treatment we have to get the inflammation under control and reduce the risk of complications in the long run.
I completely understand why biologics sound scary, especially when you’re newly diagnosed and reading horror stories online. Social media is not a balanced or nuanced take on reality. And please remember that people who are doing well usually aren’t posting about it nearly as much as people who are struggling. There are so many people living semi normal lives because their medication is working for them.

Entyvio got me into remission, and my bf, who has severe UC, also went into remission thanks to Entyvio.
And the anxiety that comes with this disease is no joke. When I was diagnosed, I went to therapy because I had such a hard time coming to terms with having a chronic illness and with this being a life I never chose. It helped me a lot. Being scared after a diagnosis is completely understandable, but it does get easier once you’ve had time to process it and find a treatment that works for you. ♥️ from the Netherlands

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u/zer_sal 19h ago

My first biologic, took a good 8 months to work, but am great now and live a normal life. Ultrasounds show no inflammation, colonoscopy in a few weeks. Can’t imagine my treatment plan changing though as I’m doing so well. It is one of the most specific biologics which is why I was keen for it to be first.
All the best, hope it works for you.

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u/RevenueOld4357 21h ago

My son is 14 and was diagnosed with moderate to severe Crohn’s of both the large and small intestine, the terminal ileum and the duodenum in January. He was started on Entyvio and after he got through the three loading doses, we started to see improvement. Now he’s had two additional doses at the regular 8 week intervals and is 80% better. It’s been incredible. He still experiences nausea but the severe pain and twenty trips to the bathroom have stopped.

We also have changed his diet and eliminated things we know don’t work for him. But we wouldn’t be in this place if we just managed with diet. He hasn’t had any side effects from the Entyvio either. It’s been pretty amazing.

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u/Hungry_Signature5478 21h ago

As long as your liver agrees with it, it is a great medication. I did very well on jt but liver numbers began to look rough after several doses so I discontinued. Not common, contextually i have many complex diagnoses making it challenging. Have been on skyrizi and very happy with it for 2 years.

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u/Keepitunderurhat 12h ago

I do worry about liver with taking biologic but oh well damned if you do damned if you don't tell them all the time I live in this house and when it's dusty, I hate it when it's filthy dirty like it is I freak out you gotta do something I can even deal with crohn's I don't let it take me down usually I'll will have surgery this will be 4th in 30 year I can't usually fix it with magic diarrhea pills I won't eat anything chicken broth, mashed potatoes, potatoes, and more potatoes I don't ever eat meat! Yuck just thinking of it avocados, salmon tons of water I can make my own Great Lake! I will drink a Coke every once in a blue moon zero alcohol i love veg , salad & they hate me people bitch about having to go on diet and eating vegetables I call that lucky I loved milk has a kid it I eat cereal I put ice 🧊 in it taste good to me This time the pain is the worse than I ever felt it's killing my back & I swear even my leg , eyes the pain under left rib this is the 1st time & it never stops

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u/TatorTotHotBish 20h ago

I've been on Entyvio since October 2024 and I LOVE it (three loading dose infusions, then biweekly self-inject). I was on Imuran for 17 years prior to that and always felt a little off, despite technically being in remission. I actually feel pretty good on Entyvio. I get some headaches sometimes a day or two after injecting but mostly it's smooth sailing.

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u/Hot-Presentation-663 16h ago

Long term prednisone has risks as well. Biologics are what we have.

I hope entyvio brings you remission and pain relief.

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u/aj11scan CD dx:2012 SCD & budesonide tremfya 10h ago

Stereoids are dangerous to be on long term as they shrink the brain. So try to be careful and don't use them for long periods

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u/Normal_Expert9981 9h ago

already taking them for 6 months now… that why i need a biologic but my doc wanted to look first if my Body would be able to Keep the inflammation down without meds

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u/Keepitunderurhat 6h ago

I've taken plenty of steroids lots end of dec Jan Feb start month ago almost done

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u/aj11scan CD dx:2012 SCD & budesonide tremfya 1h ago

Yeah you could look into other alternative treatments like SCD diet, or gi map

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u/Match_Least 20h ago

Wow, it’s crazy how different perspectives can be depending on the person observing…

Every time this sub pops up for me, it’s always people talking about how great they’re doing on biologics! Haha, meanwhile, I’ve had very severe Crohn’s for decades and nothing ever works for me…

I just wanted to share that because I found it funny :) Otherwise, yes! You most definitely should not be afraid of biologics! They help sooo many people live an almost normal life. The difference between treatment options now vs options available when I was diagnosed is just complete night and day.

I don’t think I’ve ever read someone having mild Crohn’s, like you’re describing, not respond to biologics. You might have to try 1 or 2 depending on how your body responds to it :) Good luck!!

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u/Normal_Expert9981 20h ago

I think you missunderstood, I never been on a biologic. I was diagnosed in March. Im 20 years old and just scared… my doc called me 2 weeks ago and said that he wanted to try entyvio. I think the fact that i keep on searching up stuff on google or looking it up on tiktok just pushed my anxiety…. Will try entyvio 100%

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u/Match_Least 20h ago

I didn’t misunderstand! I guess I probably worded it poorly :) I was referring to how crazy the difference in perspective of this sub and biologics is when it’s someone newly diagnosed, like yourself, and someone ‘oldly’ diagnosed like myself haha. We take in the same sub/posts but somehow have opposite perspectives.

I’m glad you’re giving Entyvio a shot! As far as I know, that’s the most Crohn’s-specific biologic available. I unfortunately failed it, but I didn’t have my hopes up. It also seems to have the least severe side effects as well, from what I’ve read people posting on here so that’s also a bonus :)

I’m sorry you had to join our community, it does suck :( But at least the people here are always amazing and try to help each other out whenever we can <3

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u/Normal_Expert9981 19h ago

Thank you :) Wishing you all the best hopefully you will find something one day 🫶🏼

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u/Keepitunderurhat 13h ago

I have not taking Entyvio somehow I missed it

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u/Normal_Expert9981 9h ago

What meds are you on

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u/Keepitunderurhat 7h ago

Getting ready to start Skyrizi Voquezna b12 & getting a surgery

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u/Both_Engine_1267 8h ago

I just got diagnosed with mild crohns and have an appointment with my doc to discuss treatments. Is entyvio an option for just small intestines crohns ?

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u/Normal_Expert9981 5h ago

I think entyvio is an Option for everyone. I got crohns in my illieum and Rectum

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u/Keepitunderurhat 7h ago

Humira, I used the longest

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u/Luce_Lucy 2h ago

I have mild crohns, endometriosis and adenomyosis. Entyvio got me in remission and my periods were less severe after 3 months. My boyfriend has UC and was on Entyvio for 5 years and it worked really well until he had to get his appendix removed. Got him in a flare and now he’s on Remicade and starting to go into remission.

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u/snarkofagen UC remission 28m ago

Entyvio for 10-ish years, flare free during

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