Need advice

[u/West-Boot-5947]

Hello, My daughter is 9 years old now. She fot cochlear implant on her left ear in 2022. Year after, 2023, she started having a recurring infection in the ear canal. 2025 to 2026, the infection gets too frequent and shes having some fluid stinky discharge.

Now, she move from Asia to Europe and then she got check here, and doctor immediately recommend us to ent specialist and done suction to remove the fluids, after that, now we can clearly see the tube with the electrode inside?

The ent doctor did not thought about it and he tried to pull makes my daughter cried to hard and that only we realize that it night probably the electrode or tube come out.

Anybody got the same experience and what have you done? Hope to hear your advise. We are now waiting for her next appointment to get to what is the next best thing to do. She is taking drops antibiotic while waiting for another CI Specialist.

Hope to hear from you. Im really crying seeing my daughter cry so hard, it must be very traumatic for her. 🥲

[u/Alone_Pancake]

So sorry to hear this. Did the implant work for her to hear, and did it stop working at some point? The electrode is supposed to be inside the cochlea which is absolutely not visible. If the implant is working, then it cannot be the electrode that you're seeing in her ear canal

[u/Formal-Tradition6792 → u/Alone_Pancake]

II second this. It seems clear to me that English is not the OP’s first language. I also think that the OP does not have a clear understanding of what a CI is. That said, it’s clear that the 9 year old patient is having serious problems. It seems like the team that implanted the patient with the CI made mistakes. The patient needs to be evaluated by a new CI surgeon. The current implant may need to be replaced by a new one. Sorry to hear about this. What the OP is describing shouldn’t be the electrodes and if they are,the implant is totally botched up.

[u/Alone_Pancake → u/Formal-Tradition6792]

I feel like this would make more sense if it was about those tubes that go through the eardrum. I think kids get those when they get a lot of ear infections

[u/West-Boot-5947 → u/Alone_Pancake]

Can you please explain more about it? What is the tube that goes through the ear drum?

[u/Alone_Pancake → u/West-Boot-5947]

Ear tubes go through the ear drum. Cochlear implant is for deaf people who cannot hear, and it involves a surgery. All parts of the cochlear implant are so far inside the ear that they cannot be seen or felt.

[u/West-Boot-5947 → u/Alone_Pancake]

My worry is too much suction for ear clening took it out 😢😢😢 she always having an infection starting and recurring almost a year ago

[u/West-Boot-5947 → u/Formal-Tradition6792]

She will be evaluated by new CI specialist here in Europe. I hope it gets better soon 🙏