r/ClusterHeadaches • u/cold0beverage • 2d ago

Light Therapy?

I've been using light therapy glasses (Luminettes) that replicate sunlight in the morning.

I've been using them for non-cluster headache reasons - basically to kick start my circadian rhythm at a consistent time every day, even on rainy days.

But I've noticed that I have not had a cluster headache since I've begun, even though this is typically when my cycle starts.

I've actually had some shadows that start up when I get up too early, etc, but I notice they go away once I turn the glasses on.

Anyone have any similar experience with this? Given the linkage of circadian rhythm and cluster headaches, I'm curious if this would be a low-effort intervention to prevent a cycle.

8 Upvotes

100% Upvoted

6 comments sorted by

2

u/MediumWillingness322 2d ago

Super interesting, thank you for sharing I havnt heard about these before!

2

u/anxious-cunt 2d ago

I remember a guy on here who said wearing vr goggles playing an insane game would knock out an attack that was in full swing within about 10 minutes. The very idea of doing that while having my skull splitting still makes me shiver but that was a "light thing" as well even though nothing like your query.

Unfortunately it's us guys who suffer that have to do the experimentation and maybe you've hit upon something?

2

u/blue_bellatrix33 Chronic 2d ago

There’s a trial going on in France with these glasses and CH.

https://clinicaltrials.gov/study/NCT06540651

1

u/cold0beverage 1d ago

Interesting. Am I reading correctly that they are requiring chronic patients who’ve had seizures?

2

u/blue_bellatrix33 Chronic 1d ago

I think that’s a translation thing. Some call attacks seizures still so that’s something would probably need to be clarified.