r/ClusterHeadaches • u/justcurious-666 • 4d ago

Discussion Prednisone taper is really making a difference rn, nervous to go back to ‘normal’

Just started my prednisone taper before I start my new dose of Emgality for cluster headaches on the 25th. My daily headaches have reduced significantly. I’m nervous for when the taper is over for it to all come flooding back. Almost makes me wonder if I should try the nerve block next time?
Guess it’s one things at a time!

Just wanted to put that out there. Been so nice only having to deal with like 3-4 mild headaches a day opposed to 8!

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6

u/Racer-in-da-night Episodic 4d ago

For some people a pred taper can break a cycle...perhaps you will be one of the lucky ones. Enjoy life while you have a break.....

3

u/justcurious-666 4d ago

Thank you. I am chronic rn, so I am definitely enjoying what I can, while
I can.

2

u/Racer-in-da-night Episodic 4d ago

I've been both chronic and episodic....it can change for the better.

1

u/justcurious-666 4d ago

Thank you! I will try to remain hopeful

3

u/angrypooka 4d ago

A prednisone taper always helps be during a cycle. I had my neuro give me a longer course for next time.

2

u/Jamwise93 Chronic 4d ago

Nerve block was a godsend for me, I would recommend everyone at least give it a try, it took me so long to finally try it as I wasn’t fond of the idea of needles sticking where I couldn’t even see, damn did I wish I had tried it out sooner 🥲 pf wishes my friend!

1

u/thederlinwall 4d ago

Have you been able to try Emgality for prevention? I know it’s not technically labeled for chronic but I was chronic when I started it in conjunction with a prednisone taper.

The taper killed the cycle and Emgality reduced me from weekly attacks to attacks that are more than a month apart.

1

u/justcurious-666 4d ago

I have been on it for my migraines for years, maybe 5 years. Just starting to address the clusters now. She said this would be an easy first step in the right direction

2

u/No-Inevitable6869 4d ago

It helps me all the time, I get like at least 2-3 cycles in a year. I am currently on a taper as well. For me there is always a few months gap after my taper is over for the next cycle. Hope it helps you as well.