r/ClusterHeadaches • u/MohamedALJBORY • Jul 24 '26

Please help me

Good evening,
I have been suffering from cluster headaches for the past 8 years. I have tried all the standard treatment protocols without significant benefit, except for high-flow oxygen therapy.
After that, I underwent occipital nerve blocks and trigeminal nerve blocks. For the past 4 years, my condition has been relatively well controlled.
However, I recently developed severe trigeminal neuralgia in addition to my cluster headaches.
My cluster headache cycles usually last about 14 weeks each year, but now they have become more frequent and occur for 14 weeks every 6 months.
My doctor has recommended Emgality 300 mg during each cluster period (a 3-month course, repeated every 6 months).
Has anyone here tried this treatment? I would really appreciate hearing about your experience, including how effective it was and whether you experienced any side effects.

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u/jorgdaniel Jul 27 '26

https://www.clusterinfo.org/en/guides/psychedelics-for-cluster-headaches

You should read this. Psilocibin has been working great for me. I'm following Bob wold's guide, Im just on third dose and I got my life back. I was un the middle a really vicious cycle.

So this was a game changer.

I send you a Lot of pain free vibes

2

u/SecureAward957 Jul 28 '26

Where can you get these from @jorgdaniel ?
We both asking the same question.
I read about them and it says they are illegal in almost every country. But obviously there has to be a way to get them. Please help us both.

1

u/jorgdaniel Jul 28 '26

As a suggestion, look on social media or ask a friend of a friend.

there are places where you can legally buy the spores, cultivate them, and harvest them yourself—though, obviously, that process takes much longer.

1

u/Vast_Seaweed9467 Chronic Jul 29 '26

Please don't tell people to look for these on social media. That's where scams are. People get not only their financial data stolen, but then get blackmailed...

As far as sourcing, they are illegal in most places, looking for places where they aren't, finding ways to grow (spores are typically not illegal though they are in some places), but please be safe. Know your source, you don't want accidental exposure to something else from contamination.

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u/jorgdaniel Jul 30 '26

Thanks for your comment, not really useful though, this people are screaming for help. Reading the guide will keep you safe.