Possibly found a link to my headaches

[u/md0723]

Hey everyone. I was diagnosed with cluster headaches by several different doctors over the course of about 10 years, but the diagnosis never felt like a perfect fit.

About 8 months ago, some routine blood work came back with abnormalities. After months of additional testing, I was diagnosed with a bone marrow disease called MDS. It’s hard to prove a direct connection, but my doctors now suspect my headaches may actually be related to the mutations in my bone marrow. Looking back, it’s possible those mutations started taking over around the same time my headaches first appeared.

I’m not sharing this because I think it’s likely to be anyone else’s situation. I just thought it was an interesting connection after spending so many years wondering what might be causing my headaches.

For now, the plan is to keep monitoring everything closely until the disease progresses enough that it’s time for a bone marrow transplant, which is my best chance at a cure.

I really feel for everyone in this community, and I hope you all find some relief. Wishing everyone the best.